Archive for the 'Day by day 2021' Category
A change of perspective
• August 11, 2021 • 1 CommentPosted in Along the way, Day by day 2021, Diagnosed, Life after diagnosis, living
Tags: acceptance, eli and ella, Eliandellasprayerwarriors, Fear, God, gratitude, journey, joy, life, Love, metachromatic leukodystrophy, MLD, perspective, sorrow, special needs, strength
When love hurts
• August 2, 2021 • 1 CommentPosted in Along the way, Back to life and living, Day by day 2021, Diagnosed
Tags: choices, Eliandellasprayerwarriors, Fear, God, hurt, journey, life, Love, mental health, MLD, one day at a time, pain, sorrow, special needs parent, strength, trust
Philly for the day and another lesson in never giving up – Jan 10
• January 11, 2021 • Leave a CommentPosted in Day by day 2021, Diagnosed
Tags: 2021, art museum, change, eli vivian, eliandella, gift, gratitude, growth, happiness, lessons, leukodystrophy, live, lucky, metachratoc leukodystrophy, Miracle, my4es, never give up, pats steaks, Philadelphia, Rocky Balboa, struggle, thankful, trials
Day by day in every way I’m getting better and better – Emile Coue – Jan 6-Jan 9th
• January 11, 2021 • Leave a CommentPosted in Day by day 2021, Diagnosed
Tags: anxiety, day by day, Eli and Ellas Prayer Warriors, Enjoythemoment, Fear, future, gene therapy, God, hope, journey, joy, keep going, learning, metachromatic leukodystrophy, MLD, never give up, normalcy, rare disease, sadness, sobriety, sorrow, special needs, strength, warriors
Jan 5th – Signs?
• January 6, 2021 • 2 CommentsPosted in Day by day 2021, Diagnosed
Tags: acceptance, anxiety, anxiousness, changes, death, depression, eli and ella, Eli and Ellas Prayer Warriors, Eliandellasprayerwarriors, family, Fear, God, journey, joy, life, Love, memories, mess, message, metachromatic leukodystrophy, MLD, signs, sobriety, sorrow, strength
Jan 4th 2021 – Finding gratitude
• January 6, 2021 • 1 CommentPosted in Day by day 2021, Diagnosed
Tags: acceptance, day by day, eli and ella, Eli and Ellas Prayer Warriors, Eliandellasprayerwarriors, Enjoythemoment, Fear, God, gratitude, journey, joy, life, Love, metachromatic leukodystrophy, MLD, never give up, sobriety, sorrow, strength, working on me
Life as I know it; day by day – Jan 1st
• January 6, 2021 • 1 CommentPosted in Day by day 2021
Tags: 2021, anxiety, caregiver, change, day by day, demons, Eli and Ellas Prayer Warriors, God, life, my4es, sobriety, special needs, warriors
Fear Not 