The desperate search for joy in pain
• January 16, 2019 • 7 CommentsPosted in Diagnosed
Tags: acceptance, eli vivian, Eliandellasprayerwarriors, Ella vivian, Fear, gene therapy, God, journey, metachromatic leukodystrophy, MLD, normalcy, sorrow
A note to me… For you
• November 29, 2014 • 5 CommentsPosted in Life after diagnosis, Pre MLD
Tags: acceptance, challenges, changes, letter to myself, metachratoc leukodystrophy, MLD
When looking backward gets you nowhere fast
• October 12, 2014 • 2 CommentsPosted in Back to life and living
Tags: acceptance, eli, ella, future, helpless, life, metachromatic leukodystrophy, MLD, past, presrnt
