Pain and beauty, blended together
• July 5, 2026 • 2 CommentsPosted in Diagnosed, Life after diagnosis, living, the ride of my life
Tags: acceptance, anxiety, anxious, blog, caregiver, challenge, change, changes, choices, clinical trial, day by day, demons, depression, eli and ella, Eli and Ellas Prayer Warriors, eli vivian, enjoy the moment, Enjoythemoment, family, Fear, friends, future, gene therapy, God, gratitude, grief, happiness, healing, Hero, hope, inclusion, Italy, journey, keep going, learning, lessons, letting go, leukodystrophy, life, live, live like Eli, Love, meditation, metachromatic leukodystrophy, Milan, miracles, MLD, my4es, never give up, normalcy, one day at a time, past, purpose, Questions, rare disease, recovery, retreat, sadness, sorrow, special needs, special needs parent, special needs parenting, spring-ford, strength, struggle, surrender, thankful, trials, trust
Traded not healed
• February 11, 2026 • Leave a CommentPosted in the ride of my life
Tags: addiction recovery, caregiver burnout, Eli and Ellas Prayer Warriors, God, metachromatic leukodystrophy, special needs parent, trauma and healing
When love hurts
• August 2, 2021 • 1 CommentPosted in Along the way, Back to life and living, Day by day 2021, Diagnosed
Tags: choices, Eliandellasprayerwarriors, Fear, God, hurt, journey, life, Love, mental health, MLD, one day at a time, pain, sorrow, special needs parent, strength, trust
