An army of kindness
• October 24, 2020 • Leave a CommentPosted in Diagnosed, Life after diagnosis, living
Tags: Adam Sandler, army, eli and ella, Eliandellasprayerwarriors, Enjoythemoment, family, Hero, journey, kindness, life, Love, memories, metachromatic leukodystrophy, MLD, strength
PTSD
• August 6, 2020 • Leave a CommentPosted in Along the way, Diagnosed, Life after diagnosis, living, My journey, the ride of my life
Tags: eli and ella, Eli and Ellas Prayer Warriors, Eliandellasprayerwarriors, Fear, friends, gene therapy, God, growth, healing, journey, joy, life, memories, metachromatic leukodystrophy, Milan, missing, MLD, post traumatic stress disorder, PTSD, strength, warriors
Let’s be honest
• August 3, 2020 • Leave a CommentPosted in Diagnosed, Life after diagnosis, living, My journey
Tags: anxiety, eli and ella, Eli and Ellas Prayer Warriors, family, future, God, joy, learn, learning, life, Love, memories, pain, past, purpose, sadness, special needs
The silent thief
• July 19, 2020 • Leave a CommentPosted in Diagnosed, My journey, the ride of my life
Tags: acceptance, anxiety, changes, eli and ella, Eli and Ellas Prayer Warriors, Eliandellasprayerwarriors, Fear, God, journey, joy, life, Love, metachromatic leukodystrophy, MLD, sorrow, strength
Treasured moments
• July 5, 2020 • Leave a CommentPosted in Diagnosed, Life after diagnosis
Tags: acceptance, Eli and Ellas Prayer Warriors, Eliandellasprayerwarriors, Enjoythemoment, Fear, friends, gene therapy, God, hope, journey, joy, life, Love, memories, metachromatic leukodystrophy, MLD, strength
The gift of struggle
• June 22, 2020 • 2 CommentsPosted in Diagnosed, Life after diagnosis, My journey
Tags: challenge, changes, eli and ella, Eliandellasprayerwarriors, gene therapy, God, Hero, journey, joy, life, memories, metachromatic leukodystrophy, MLD, rare disease, strength, struggle
And so I write
• January 25, 2020 • Comments Off on And so I writePosted in Diagnosed, Life after diagnosis, My journey, the ride of my life
Tags: acceptance, challenge, changes, demons, Eliandellasprayerwarriors, Fear, God, hope, journey, life, metachromatic leukodystrophy, MLD, sorrow, strength, warriors
The gift of conformity
• December 27, 2019 • 7 CommentsPosted in Back to life and living, Life after diagnosis, Milan
Tags: acceptance, conformity, Eliandellasprayerwarriors, Fear, journey, life, memories, metachromatic leukodystrophy, Milan, MLD, strength
The pain of letting go
• October 27, 2019 • Comments Off on The pain of letting goPosted in Along the way, Diagnosed, Life after diagnosis, the ride of my life
Tags: acceptance, Eliandellasprayerwarriors, Fear, grief, journey, letting go, life, Love, metachromatic leukodystrophy, MLD, normalcy, sorrow
Rare Disease Day
• February 28, 2017 • 2 CommentsPosted in Diagnosed, Diagnosis, Life after diagnosis, Milan
Tags: clinical trial, life, metachromatic leukodystrophy, Milan, MLD, rare disease day
