Life after diagnosis | Fear Not

Archive for the 'Life after diagnosis' Category

And so I write

• January 25, 2020 • Comments Off

Posted in Diagnosed, Life after diagnosis, My journey, the ride of my life
Tags: acceptance, challenge, changes, demons, Eliandellasprayerwarriors, Fear, God, hope, journey, life, metachromatic leukodystrophy, MLD, sorrow, strength, warriors

The gift of conformity

• December 27, 2019 • 7 Comments

Posted in Back to life and living, Life after diagnosis, Milan
Tags: acceptance, conformity, Eliandellasprayerwarriors, Fear, journey, life, memories, metachromatic leukodystrophy, Milan, MLD, strength

The pain of letting go

• October 27, 2019 • Comments Off

Posted in Along the way, Diagnosed, Life after diagnosis, the ride of my life
Tags: acceptance, Eliandellasprayerwarriors, Fear, grief, journey, letting go, life, Love, metachromatic leukodystrophy, MLD, normalcy, sorrow

Rare Disease Day

• February 28, 2017 • 2 Comments

Posted in Diagnosed, Diagnosis, Life after diagnosis, Milan
Tags: clinical trial, life, metachromatic leukodystrophy, Milan, MLD, rare disease day

When you don’t (want to)see what’s right in front of your face

• October 7, 2016 • 2 Comments

Posted in Diagnosed, Life after diagnosis
Tags: Eli and Ellas Prayer Warriors, gene therapy, metachromatic leukodystrophy, MLD

Life as I know it three years later

• September 19, 2015 • 6 Comments

Posted in Life after diagnosis
Tags: diagnosis, eli and ella, lessons, life changes, metachromatic leukodystrophy, MLD, warriors

Breaking the cycle… The relationship between my mom and I and the acceptance that has finally freed me and allowed me to change things for my own kids.

• July 21, 2015 • 6 Comments

Posted in Diagnosed, Life after diagnosis, My journey
Tags: Eli and Ellas Prayer Warriors, family, Fear, life, mental illness, MLD