Archive for the 'Life after diagnosis' Category
Surrendering – the greatest gift I can give myself
• February 16, 2021 • 2 CommentsPosted in Life after diagnosis, living
Tags: acceptance, eli and ella, Eli and Ellas Prayer Warriors, Eliandellasprayerwarriors, future, gene therapy, God, journey, joy, learning, let go, life, Love, metachromatic leukodystrophy, MLD, music, sobriety, strength, surrender, warriors
For what it’s worth
• December 30, 2020 • 3 CommentsPosted in Diagnosed, Life after diagnosis, living
Tags: acceptance, challenge, changes, eli and ella, Eli and Ellas Prayer Warriors, Eliandellasprayerwarriors, family, Fear, gene therapy, God, Hero, journey, joy, life, Love, memories, metachromatic leukodystrophy, MLD, pictures, sorrow, strength, warriors
When you can’t look away
• December 1, 2020 • Leave a CommentPosted in Diagnosed, Diagnosis, Life after diagnosis, living
Tags: acceptance, challenge, changes, eli and ella, Eliandellasprayerwarriors, Enjoythemoment, family, Fear, gene therapy, gift, journey, joy, life, Love, lucky, memories, metachromatic leukodystrophy, MLD, sorrow, strength, warriors
An army of kindness
• October 24, 2020 • Leave a CommentPosted in Diagnosed, Life after diagnosis, living
Tags: Adam Sandler, army, eli and ella, Eliandellasprayerwarriors, Enjoythemoment, family, Hero, journey, kindness, life, Love, memories, metachromatic leukodystrophy, MLD, strength
PTSD
• August 6, 2020 • Leave a CommentPosted in Along the way, Diagnosed, Life after diagnosis, living, My journey, the ride of my life
Tags: eli and ella, Eli and Ellas Prayer Warriors, Eliandellasprayerwarriors, Fear, friends, gene therapy, God, growth, healing, journey, joy, life, memories, metachromatic leukodystrophy, Milan, missing, MLD, post traumatic stress disorder, PTSD, strength, warriors
Let’s be honest
• August 3, 2020 • Leave a CommentPosted in Diagnosed, Life after diagnosis, living, My journey
Tags: anxiety, eli and ella, Eli and Ellas Prayer Warriors, family, future, God, joy, learn, learning, life, Love, memories, pain, past, purpose, sadness, special needs
Treasured moments
• July 5, 2020 • Leave a CommentPosted in Diagnosed, Life after diagnosis
Tags: acceptance, Eli and Ellas Prayer Warriors, Eliandellasprayerwarriors, Enjoythemoment, Fear, friends, gene therapy, God, hope, journey, joy, life, Love, memories, metachromatic leukodystrophy, MLD, strength
The gift of struggle
• June 22, 2020 • 2 CommentsPosted in Diagnosed, Life after diagnosis, My journey
Tags: challenge, changes, eli and ella, Eliandellasprayerwarriors, gene therapy, God, Hero, journey, joy, life, memories, metachromatic leukodystrophy, MLD, rare disease, strength, struggle
And so I write
• January 25, 2020 • Comments Off on And so I writePosted in Diagnosed, Life after diagnosis, My journey, the ride of my life
Tags: acceptance, challenge, changes, demons, Eliandellasprayerwarriors, Fear, God, hope, journey, life, metachromatic leukodystrophy, MLD, sorrow, strength, warriors
The gift of conformity
• December 27, 2019 • 7 CommentsPosted in Back to life and living, Life after diagnosis, Milan
Tags: acceptance, conformity, Eliandellasprayerwarriors, Fear, journey, life, memories, metachromatic leukodystrophy, Milan, MLD, strength
