Life after diagnosis | Fear Not

Archive for the 'Life after diagnosis' Category

Rare Disease Day

• February 28, 2017 • Leave a Comment

Posted in Diagnosed, Diagnosis, Life after diagnosis, Milan
Tags: clinical trial, life, metachromatic leukodystrophy, Milan, MLD, rare disease day

When you don’t (want to)see what’s right in front of your face

• October 7, 2016 • 2 Comments

Posted in Diagnosed, Life after diagnosis
Tags: Eli and Ellas Prayer Warriors, gene therapy, metachromatic leukodystrophy, MLD

Life as I know it three years later

• September 19, 2015 • 6 Comments

Posted in Life after diagnosis
Tags: diagnosis, eli and ella, lessons, life changes, metachromatic leukodystrophy, MLD, warriors

Breaking the cycle… The relationship between my mom and I and the acceptance that has finally freed me and allowed me to change things for my own kids.

• July 21, 2015 • 6 Comments

Posted in Diagnosed, Life after diagnosis, My journey
Tags: Eli and Ellas Prayer Warriors, family, Fear, life, mental illness, MLD

Finding purpose in pain

• April 7, 2015 • 4 Comments

Posted in Back to life and living, Diagnosis, Life after diagnosis
Tags: eli and ella, journey, joy, metachromatic leukodystrophy, MLD, purpose, sorrow

Please

• February 9, 2015 • 3 Comments

Posted in Back to life and living, Life after diagnosis
Tags: Eliandellasprayerwarriors, journey, joy, life, metachromatic leukodystrophy, MLD, sorrow

A note to me… For you

• November 29, 2014 • 5 Comments

Posted in Life after diagnosis, Pre MLD
Tags: acceptance, challenges, changes, letter to myself, metachratoc leukodystrophy, MLD