Archive for the 'Along the way' Category
So much bigger than the game -A feel good story
• March 22, 2023 • 5 CommentsPosted in Along the way, Diagnosed, Life after diagnosis, living
Tags: acceptance, basketball, changes, coaches, day by day, eli and ella, Eli and Ellas Prayer Warriors, Eliandellasprayerwarriors, Enjoythemoment, family, feel good, gene therapy, God, gratitude, Hero, hope, inclusion, inspiring, inspirstional, journey, joy, learning, Love, memories, metachromatic leukodystrophy, MLD, more than basketball, my four warriors, never give up, Rams, special needs, spring ford rams, spring-ford, strength, warriors
Giving it all in the moment we are in
• March 11, 2023 • 3 CommentsPosted in Along the way, Back to life and living, Diagnosed, Life after diagnosis, living, the ride of my life
Tags: acceptance, day by day, don’t stop, eli and ella, Eli and Ellas Prayer Warriors, Eliandellasprayerwarriors, enjoy the moment, Enjoythemoment, gene therapy, God, gratitude, Hero, hope, journey, joy, learning, life, live, live in the moment, live like Eli, Love, metachromatic leukodystrophy, MLD, never give up, Rocky, special needs, strength, warriors
Learning to give yourself grace
• January 18, 2023 • 1 CommentPosted in Along the way, Life after diagnosis, living
Tags: acceptance, anxiety, day by day, DIY, do it yourself, eli and ella, Eliandellasprayerwarriors, Fear, gene therapy, Grace, gratitude, hope, journey, joy, learning, life, Love, memories, metachromatic leukodystrophy, MLD, normalcy, Pinterest, Pinterest fail, rare disease, sorrow, special needs, strength, warriors
Inclusion at its finest
• January 9, 2023 • Leave a CommentPosted in Along the way, Diagnosed, Life after diagnosis, living
Tags: acceptance, changes, community, day by day, eli and ella, Eliandellasprayerwarriors, Enjoythemoment, God, gratitude, hope, inclusion, journey, joy, learning, life, Love, memories, metachromatic leukodystrophy, MLD, never give up, sfasd, special needs, spring-ford, spring-ford proud, strength, warriors
Violated and vulnerable
• October 31, 2022 • 3 CommentsPosted in Along the way, Diagnosed, Life after diagnosis
Tags: acceptance, choices, eli and ella, Eli and Ellas Prayer Warriors, Eliandellasprayerwarriors, Facebook, Fear, God, hacked, hope, journey, lessons, life, Love, memories, metachromatic leukodystrophy, MLD, never give up, sorrow, special needs, strength, struggle, violated, warriors
Navigating the rollercoaster of life
• October 19, 2022 • Leave a CommentPosted in Along the way, Diagnosed, Life after diagnosis, living, the ride of my life
Tags: caregiver, Covid, day by day, eli and ella, Eli and Ellas Prayer Warriors, Eliandellasprayerwarriors, exhausted, God, journey, joy, life, metachromatic leukodystrophy, MLD, never give up, peaks and valleys, roller coaster, special needs, strength, ups and downs, warriors
Healing all around
• September 15, 2022 • Leave a CommentPosted in Along the way, Diagnosed, living
Tags: acceptance, eli and ella, Eliandellasprayerwarriors, gene therapy, giving back, God, healing, hope, journey, joy, learning, Love, metachromatic leukodystrophy, MLD, never give up
A change of perspective
• August 11, 2021 • 1 CommentPosted in Along the way, Day by day 2021, Diagnosed, Life after diagnosis, living
Tags: acceptance, eli and ella, Eliandellasprayerwarriors, Fear, God, gratitude, journey, joy, life, Love, metachromatic leukodystrophy, MLD, perspective, sorrow, special needs, strength
When love hurts
• August 2, 2021 • 1 CommentPosted in Along the way, Back to life and living, Day by day 2021, Diagnosed
Tags: choices, Eliandellasprayerwarriors, Fear, God, hurt, journey, life, Love, mental health, MLD, one day at a time, pain, sorrow, special needs parent, strength, trust
PTSD
• August 6, 2020 • Leave a CommentPosted in Along the way, Diagnosed, Life after diagnosis, living, My journey, the ride of my life
Tags: eli and ella, Eli and Ellas Prayer Warriors, Eliandellasprayerwarriors, Fear, friends, gene therapy, God, growth, healing, journey, joy, life, memories, metachromatic leukodystrophy, Milan, missing, MLD, post traumatic stress disorder, PTSD, strength, warriors
Fear Not 