Philly for the day and another lesson in never giving up – Jan 10
• January 11, 2021 • Leave a CommentPosted in Day by day 2021, Diagnosed
Tags: 2021, art museum, change, eli vivian, eliandella, gift, gratitude, growth, happiness, lessons, leukodystrophy, live, lucky, metachratoc leukodystrophy, Miracle, my4es, never give up, pats steaks, Philadelphia, Rocky Balboa, struggle, thankful, trials
Life as I know it three years later
• September 19, 2015 • 6 CommentsPosted in Life after diagnosis
Tags: diagnosis, eli and ella, lessons, life changes, metachromatic leukodystrophy, MLD, warriors
