Getting ready for the big game, CHOP STYLE 😍
• March 1, 2023 • Leave a CommentPosted in Diagnosed
Tags: acceptance, basketball, district, eli and ella, Eli and Ellas Prayer Warriors, Eliandellasprayerwarriors, Fear, gene therapy, God, journey, joy, life, Love, memories, metachromatic leukodystrophy, MLD, Rams, sorrow, special needs, spring-ford, strength, warriors
Bling
• March 1, 2023 • Leave a CommentPosted in Diagnosed
Tags: acceptance, bling, eli and ella, Eli and Ellas Prayer Warriors, Eliandellasprayerwarriors, Fear, gene therapy, God, journey, joy, life, Love, memories, metachromatic leukodystrophy, MLD, sorrow, special needs, strength, warriors
Will God heal me?
• February 28, 2023 • 2 CommentsPosted in Diagnosed
Tags: acceptance, anxiety, can God still perform miracles, changes, day by day, eli and ella, Eli and Ellas Prayer Warriors, Eliandellasprayerwarriors, Enjoythemoment, family, Fear, gene therapy, God, gratitude, healing, Hero, hope, journey, joy, learning, life, Love, memories, metachromatic leukodystrophy, MLD, never give up, Questions, sorrow, special needs, strength, warriors
The ups and downs and things you hope never come true when you sign up for a clinical trial.
• February 6, 2023 • 2 CommentsPosted in Diagnosed
Tags: acceptance, adhd, anger, challenge, changes, clinical trial, day by day, eli and ella, Eliandellasprayerwarriors, Enjoythemoment, family, Fear, gene therapy, God, Hero, hope, learning, Love, metachromatic leukodystrophy, MLD, mood disturbances, never give up, ovaries, sadness, sorrow, special needs, t, warriors
Learning to give yourself grace
• January 18, 2023 • 1 CommentPosted in Along the way, Life after diagnosis, living
Tags: acceptance, anxiety, day by day, DIY, do it yourself, eli and ella, Eliandellasprayerwarriors, Fear, gene therapy, Grace, gratitude, hope, journey, joy, learning, life, Love, memories, metachromatic leukodystrophy, MLD, normalcy, Pinterest, Pinterest fail, rare disease, sorrow, special needs, strength, warriors
Violated and vulnerable
• October 31, 2022 • 3 CommentsPosted in Along the way, Diagnosed, Life after diagnosis
Tags: acceptance, choices, eli and ella, Eli and Ellas Prayer Warriors, Eliandellasprayerwarriors, Facebook, Fear, God, hacked, hope, journey, lessons, life, Love, memories, metachromatic leukodystrophy, MLD, never give up, sorrow, special needs, strength, struggle, violated, warriors
I’m sorry Ella
• October 18, 2022 • 1 CommentPosted in Diagnosed, living
Tags: acceptance, caregiver, day by day, eli and ella, Eli and Ellas Prayer Warriors, Eliandellasprayerwarriors, Fear, God, I’m sorry, journey, life, Love, memories, metachromatic leukodystrophy, MLD, never give up, past life, sorrow, special needs
Be happy…so I don’t have to be uncomfortable
• October 12, 2022 • Leave a CommentPosted in Diagnosed, Life after diagnosis, living, My journey
Tags: acceptance, blog, changes, eli and ella, Eliandellasprayerwarriors, Enjoythemoment, family, fitting in, gene therapy, God, journey, joy, life, Love, metachromatic leukodystrophy, MLD, sorrow, special needs, strength, trials, truth, uncomfortable, warriors
Four
• August 25, 2022 • 2 CommentsPosted in Diagnosed, living
Tags: acceptance, cherish, clinical trial, day by day, eli and ella, Eliandellasprayerwarriors, Enjoythemoment, Fear, four, gene therapy, God, Hero, journey, joy, life, Love, memories, metachromatic leukodystrophy, MLD, purpose, sadness, sorrow, special needs, strength, warriors
Hurt people, hurt people
• September 21, 2021 • 4 CommentsPosted in Diagnosed, Life after diagnosis, living
Tags: dementia, eli and ella, Eliandellasprayerwarriors, God, hurt people hurt people, journey, life, metachromatic leukodystrophy, MLD, rare disease, sobriety, sorrow, strength
Fear Not 