And so I write
• January 25, 2020 • Comments Off on And so I writePosted in Diagnosed, Life after diagnosis, My journey, the ride of my life
Tags: acceptance, challenge, changes, demons, Eliandellasprayerwarriors, Fear, God, hope, journey, life, metachromatic leukodystrophy, MLD, sorrow, strength, warriors
The pain of letting go
• October 27, 2019 • Comments Off on The pain of letting goPosted in Along the way, Diagnosed, Life after diagnosis, the ride of my life
Tags: acceptance, Eliandellasprayerwarriors, Fear, grief, journey, letting go, life, Love, metachromatic leukodystrophy, MLD, normalcy, sorrow
Dream a little dream
• June 26, 2019 • 2 CommentsPosted in Along the way
Tags: Dream come true, Eli and Ellas Prayer Warriors, God, leukodystrophy, metachromatic leukodystrophy, MLD, questioning, sorrow
The desperate search for joy in pain
• January 16, 2019 • 7 CommentsPosted in Diagnosed
Tags: acceptance, eli vivian, Eliandellasprayerwarriors, Ella vivian, Fear, gene therapy, God, journey, metachromatic leukodystrophy, MLD, normalcy, sorrow
Finding purpose in pain
• April 7, 2015 • 4 CommentsPosted in Back to life and living, Diagnosis, Life after diagnosis
Tags: eli and ella, journey, joy, metachromatic leukodystrophy, MLD, purpose, sorrow
Please
• February 9, 2015 • 3 CommentsPosted in Back to life and living, Life after diagnosis
Tags: Eliandellasprayerwarriors, journey, joy, life, metachromatic leukodystrophy, MLD, sorrow
His biggest fan…for life
• May 22, 2014 • 2 CommentsPosted in Diagnosed
Tags: Baseball, Eliandellasprayerwarriors, friends, life, MLD, sadness, sorrow
