Eliandellasprayerwarriors | Fear Not

Treasured moments

• July 5, 2020 • Leave a Comment

Posted in Diagnosed, Life after diagnosis
Tags: acceptance, Eli and Ellas Prayer Warriors, Eliandellasprayerwarriors, Enjoythemoment, Fear, friends, gene therapy, God, hope, journey, joy, life, Love, memories, metachromatic leukodystrophy, MLD, strength

The gift of struggle

• June 22, 2020 • 2 Comments

Posted in Diagnosed, Life after diagnosis, My journey
Tags: challenge, changes, eli and ella, Eliandellasprayerwarriors, gene therapy, God, Hero, journey, joy, life, memories, metachromatic leukodystrophy, MLD, rare disease, strength, struggle

And so I write

• January 25, 2020 • Comments Off

Posted in Diagnosed, Life after diagnosis, My journey, the ride of my life
Tags: acceptance, challenge, changes, demons, Eliandellasprayerwarriors, Fear, God, hope, journey, life, metachromatic leukodystrophy, MLD, sorrow, strength, warriors

The gift of conformity

• December 27, 2019 • 7 Comments

Posted in Back to life and living, Life after diagnosis, Milan
Tags: acceptance, conformity, Eliandellasprayerwarriors, Fear, journey, life, memories, metachromatic leukodystrophy, Milan, MLD, strength

The pain of letting go

• October 27, 2019 • Comments Off

Posted in Along the way, Diagnosed, Life after diagnosis, the ride of my life
Tags: acceptance, Eliandellasprayerwarriors, Fear, grief, journey, letting go, life, Love, metachromatic leukodystrophy, MLD, normalcy, sorrow

The desperate search for joy in pain

• January 16, 2019 • 7 Comments

Posted in Diagnosed
Tags: acceptance, eli vivian, Eliandellasprayerwarriors, Ella vivian, Fear, gene therapy, God, journey, metachromatic leukodystrophy, MLD, normalcy, sorrow

Please

• February 9, 2015 • 3 Comments

Posted in Back to life and living, Life after diagnosis
Tags: Eliandellasprayerwarriors, journey, joy, life, metachromatic leukodystrophy, MLD, sorrow

His biggest fan…for life

• May 22, 2014 • 2 Comments

Posted in Diagnosed
Tags: Baseball, Eliandellasprayerwarriors, friends, life, MLD, sadness, sorrow

Happy Birthday Ella!!!!

• July 11, 2013 • 8 Comments

Posted in Diagnosed, Milan
Tags: Birthday, Eliandellasprayerwarriors, Hero, Love, Milan, Miracle

Digging Deeper

• July 8, 2013 • 5 Comments

Posted in Milan
Tags: challenge, Eliandellasprayerwarriors, God, hospital, Milan, MLD, sorrow, strength