He was once like you
• February 16, 2023 • 2 CommentsPosted in Diagnosed
Tags: acceptance, changes, day by day, eli and ella, Eliandellasprayerwarriors, Enjoythemoment, gene therapy, God, growth, happiness, hope, inclusion, journey, joy, Love, memories, metachromatic leukodystrophy, MLD, moving mountains, never give up, normalcy, past, special needs, sports, strength, thankful, warriors
Philly for the day and another lesson in never giving up – Jan 10
• January 11, 2021 • Leave a CommentPosted in Day by day 2021, Diagnosed
Tags: 2021, art museum, change, eli vivian, eliandella, gift, gratitude, growth, happiness, lessons, leukodystrophy, live, lucky, metachratoc leukodystrophy, Miracle, my4es, never give up, pats steaks, Philadelphia, Rocky Balboa, struggle, thankful, trials
PTSD
• August 6, 2020 • Leave a CommentPosted in Along the way, Diagnosed, Life after diagnosis, living, My journey, the ride of my life
Tags: eli and ella, Eli and Ellas Prayer Warriors, Eliandellasprayerwarriors, Fear, friends, gene therapy, God, growth, healing, journey, joy, life, memories, metachromatic leukodystrophy, Milan, missing, MLD, post traumatic stress disorder, PTSD, strength, warriors