Archive for the 'Diagnosis' Category
When you can’t look away
• December 1, 2020 • Leave a CommentPosted in Diagnosed, Diagnosis, Life after diagnosis, living
Tags: acceptance, challenge, changes, eli and ella, Eliandellasprayerwarriors, Enjoythemoment, family, Fear, gene therapy, gift, journey, joy, life, Love, lucky, memories, metachromatic leukodystrophy, MLD, sorrow, strength, warriors
Rare Disease Day
• February 28, 2017 • 2 CommentsPosted in Diagnosed, Diagnosis, Life after diagnosis, Milan
Tags: clinical trial, life, metachromatic leukodystrophy, Milan, MLD, rare disease day
Finding purpose in pain
• April 7, 2015 • 4 CommentsPosted in Back to life and living, Diagnosis, Life after diagnosis
Tags: eli and ella, journey, joy, metachromatic leukodystrophy, MLD, purpose, sorrow
Fear Not 