Inclusion at its finest
• January 9, 2023 • Leave a CommentPosted in Along the way, Diagnosed, Life after diagnosis, living
Tags: acceptance, changes, community, day by day, eli and ella, Eliandellasprayerwarriors, Enjoythemoment, God, gratitude, hope, inclusion, journey, joy, learning, life, Love, memories, metachromatic leukodystrophy, MLD, never give up, sfasd, special needs, spring-ford, spring-ford proud, strength, warriors
A gift
• November 4, 2022 • 1 CommentPosted in Diagnosed
Tags: acceptance, Birthday, caregiver, changes, day by day, eli and ella, Eli and Ellas Prayer Warriors, gene therapy, gift, God, gratitude, hope, learning, life, Love, memories, metachromatic leukodystrophy, MLD, never give up, rare disease, sadness, special needs, strength, thankful, warriors
Be happy…so I don’t have to be uncomfortable
• October 12, 2022 • Leave a CommentPosted in Diagnosed, Life after diagnosis, living, My journey
Tags: acceptance, blog, changes, eli and ella, Eliandellasprayerwarriors, Enjoythemoment, family, fitting in, gene therapy, God, journey, joy, life, Love, metachromatic leukodystrophy, MLD, sorrow, special needs, strength, trials, truth, uncomfortable, warriors
Is God good all of the time or only when we get what we pray for?
• May 5, 2021 • 1 CommentPosted in Diagnosed, Life after diagnosis, living
Tags: acceptance, anxiety, changes, depression, eli and ella, Eliandellasprayerwarriors, faith, Fear, God, is God good, journey, joy, life, Love, metachromatic leukodystrophy, MLD, prayer, sorrow, strength, surrender
Jan 5th – Signs?
• January 6, 2021 • 2 CommentsPosted in Day by day 2021, Diagnosed
Tags: acceptance, anxiety, anxiousness, changes, death, depression, eli and ella, Eli and Ellas Prayer Warriors, Eliandellasprayerwarriors, family, Fear, God, journey, joy, life, Love, memories, mess, message, metachromatic leukodystrophy, MLD, signs, sobriety, sorrow, strength
For what it’s worth
• December 30, 2020 • 3 CommentsPosted in Diagnosed, Life after diagnosis, living
Tags: acceptance, challenge, changes, eli and ella, Eli and Ellas Prayer Warriors, Eliandellasprayerwarriors, family, Fear, gene therapy, God, Hero, journey, joy, life, Love, memories, metachromatic leukodystrophy, MLD, pictures, sorrow, strength, warriors
When you can’t look away
• December 1, 2020 • Leave a CommentPosted in Diagnosed, Diagnosis, Life after diagnosis, living
Tags: acceptance, challenge, changes, eli and ella, Eliandellasprayerwarriors, Enjoythemoment, family, Fear, gene therapy, gift, journey, joy, life, Love, lucky, memories, metachromatic leukodystrophy, MLD, sorrow, strength, warriors
The silent thief
• July 19, 2020 • Leave a CommentPosted in Diagnosed, My journey, the ride of my life
Tags: acceptance, anxiety, changes, eli and ella, Eli and Ellas Prayer Warriors, Eliandellasprayerwarriors, Fear, God, journey, joy, life, Love, metachromatic leukodystrophy, MLD, sorrow, strength
The gift of struggle
• June 22, 2020 • 2 CommentsPosted in Diagnosed, Life after diagnosis, My journey
Tags: challenge, changes, eli and ella, Eliandellasprayerwarriors, gene therapy, God, Hero, journey, joy, life, memories, metachromatic leukodystrophy, MLD, rare disease, strength, struggle
And so I write
• January 25, 2020 • Comments Off on And so I writePosted in Diagnosed, Life after diagnosis, My journey, the ride of my life
Tags: acceptance, challenge, changes, demons, Eliandellasprayerwarriors, Fear, God, hope, journey, life, metachromatic leukodystrophy, MLD, sorrow, strength, warriors