Archive for the 'My journey' Category
• October 12, 2022 •
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Posted in Diagnosed, Life after diagnosis, living, My journey
Tags: acceptance, blog, changes, eli and ella, Eliandellasprayerwarriors, Enjoythemoment, family, fitting in, gene therapy, God, journey, joy, life, Love, metachromatic leukodystrophy, MLD, sorrow, special needs, strength, trials, truth, uncomfortable, warriors
• August 6, 2020 •
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Posted in Along the way, Diagnosed, Life after diagnosis, living, My journey, the ride of my life
Tags: eli and ella, Eli and Ellas Prayer Warriors, Eliandellasprayerwarriors, Fear, friends, gene therapy, God, growth, healing, journey, joy, life, memories, metachromatic leukodystrophy, Milan, missing, MLD, post traumatic stress disorder, PTSD, strength, warriors
• August 3, 2020 •
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Posted in Diagnosed, Life after diagnosis, living, My journey
Tags: anxiety, eli and ella, Eli and Ellas Prayer Warriors, family, future, God, joy, learn, learning, life, Love, memories, pain, past, purpose, sadness, special needs
• July 19, 2020 •
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Posted in Diagnosed, My journey, the ride of my life
Tags: acceptance, anxiety, changes, eli and ella, Eli and Ellas Prayer Warriors, Eliandellasprayerwarriors, Fear, God, journey, joy, life, Love, metachromatic leukodystrophy, MLD, sorrow, strength
• June 22, 2020 •
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Posted in Diagnosed, Life after diagnosis, My journey
Tags: challenge, changes, eli and ella, Eliandellasprayerwarriors, gene therapy, God, Hero, journey, joy, life, memories, metachromatic leukodystrophy, MLD, rare disease, strength, struggle
• January 25, 2020 •
Comments Off on And so I write
Posted in Diagnosed, Life after diagnosis, My journey, the ride of my life
Tags: acceptance, challenge, changes, demons, Eliandellasprayerwarriors, Fear, God, hope, journey, life, metachromatic leukodystrophy, MLD, sorrow, strength, warriors
Fear Not 