Diagnosed | Fear Not

Archive for the 'Diagnosed' Category

Rare Disease Day

• February 28, 2017 • Leave a Comment

Posted in Diagnosed, Diagnosis, Life after diagnosis, Milan
Tags: clinical trial, life, metachromatic leukodystrophy, Milan, MLD, rare disease day

When you don’t (want to)see what’s right in front of your face

• October 7, 2016 • 2 Comments

Posted in Diagnosed, Life after diagnosis
Tags: Eli and Ellas Prayer Warriors, gene therapy, metachromatic leukodystrophy, MLD

Happiness may not always be a choice but laughter and love can be

• December 29, 2015 • Leave a Comment

Posted in Diagnosed
Tags: Eli and Ellas Prayer Warriors, happiness, laughter, Love, metachromatic leukodystrophy, MLD

Breaking the cycle… The relationship between my mom and I and the acceptance that has finally freed me and allowed me to change things for my own kids.

• July 21, 2015 • 6 Comments

Posted in Diagnosed, Life after diagnosis, My journey
Tags: Eli and Ellas Prayer Warriors, family, Fear, life, mental illness, MLD

#100happydays #day1

• February 25, 2015 • 1 Comment

Posted in Diagnosed

Everyday life – post transplant.

• October 20, 2014 • 1 Comment

Posted in Along the way, Back to life and living
Tags: appreciation, eliandella, metachromatic leukodystrophy, MLD, normalcy

Learning along the way… One obstacle at a time

• September 24, 2014 • 6 Comments

Posted in Diagnosed
Tags: believe, learning, metachromatic leukodystrophy, obstacle, warriors