Archive for the 'Diagnosed' Category
The pain of letting go
• October 27, 2019 • Comments Off on The pain of letting goPosted in Along the way, Diagnosed, Life after diagnosis, the ride of my life
Tags: acceptance, Eliandellasprayerwarriors, Fear, grief, journey, letting go, life, Love, metachromatic leukodystrophy, MLD, normalcy, sorrow
Dream a little dream
• June 26, 2019 • 2 CommentsPosted in Along the way
Tags: Dream come true, Eli and Ellas Prayer Warriors, God, leukodystrophy, metachromatic leukodystrophy, MLD, questioning, sorrow
The desperate search for joy in pain
• January 16, 2019 • 7 CommentsPosted in Diagnosed
Tags: acceptance, eli vivian, Eliandellasprayerwarriors, Ella vivian, Fear, gene therapy, God, journey, metachromatic leukodystrophy, MLD, normalcy, sorrow
Rare Disease Day
• February 28, 2017 • 2 CommentsPosted in Diagnosed, Diagnosis, Life after diagnosis, Milan
Tags: clinical trial, life, metachromatic leukodystrophy, Milan, MLD, rare disease day
When you don’t (want to)see what’s right in front of your face
• October 7, 2016 • 2 CommentsPosted in Diagnosed, Life after diagnosis
Tags: Eli and Ellas Prayer Warriors, gene therapy, metachromatic leukodystrophy, MLD
Happiness may not always be a choice but laughter and love can be
• December 29, 2015 • Leave a CommentPosted in Diagnosed
Tags: Eli and Ellas Prayer Warriors, happiness, laughter, Love, metachromatic leukodystrophy, MLD
