Archive for the 'Diagnosed' Category
A gift
• November 4, 2022 • 1 CommentPosted in Diagnosed
Tags: acceptance, Birthday, caregiver, changes, day by day, eli and ella, Eli and Ellas Prayer Warriors, gene therapy, gift, God, gratitude, hope, learning, life, Love, memories, metachromatic leukodystrophy, MLD, never give up, rare disease, sadness, special needs, strength, thankful, warriors
Violated and vulnerable
• October 31, 2022 • 3 CommentsPosted in Along the way, Diagnosed, Life after diagnosis
Tags: acceptance, choices, eli and ella, Eli and Ellas Prayer Warriors, Eliandellasprayerwarriors, Facebook, Fear, God, hacked, hope, journey, lessons, life, Love, memories, metachromatic leukodystrophy, MLD, never give up, sorrow, special needs, strength, struggle, violated, warriors
Navigating the rollercoaster of life
• October 19, 2022 • Leave a CommentPosted in Along the way, Diagnosed, Life after diagnosis, living, the ride of my life
Tags: caregiver, Covid, day by day, eli and ella, Eli and Ellas Prayer Warriors, Eliandellasprayerwarriors, exhausted, God, journey, joy, life, metachromatic leukodystrophy, MLD, never give up, peaks and valleys, roller coaster, special needs, strength, ups and downs, warriors
I’m sorry Ella
• October 18, 2022 • 1 CommentPosted in Diagnosed, living
Tags: acceptance, caregiver, day by day, eli and ella, Eli and Ellas Prayer Warriors, Eliandellasprayerwarriors, Fear, God, I’m sorry, journey, life, Love, memories, metachromatic leukodystrophy, MLD, never give up, past life, sorrow, special needs
Be happy…so I don’t have to be uncomfortable
• October 12, 2022 • Leave a CommentPosted in Diagnosed, Life after diagnosis, living, My journey
Tags: acceptance, blog, changes, eli and ella, Eliandellasprayerwarriors, Enjoythemoment, family, fitting in, gene therapy, God, journey, joy, life, Love, metachromatic leukodystrophy, MLD, sorrow, special needs, strength, trials, truth, uncomfortable, warriors
Healing all around
• September 15, 2022 • Leave a CommentPosted in Along the way, Diagnosed, living
Tags: acceptance, eli and ella, Eliandellasprayerwarriors, gene therapy, giving back, God, healing, hope, journey, joy, learning, Love, metachromatic leukodystrophy, MLD, never give up
Four
• August 25, 2022 • 2 CommentsPosted in Diagnosed, living
Tags: acceptance, cherish, clinical trial, day by day, eli and ella, Eliandellasprayerwarriors, Enjoythemoment, Fear, four, gene therapy, God, Hero, journey, joy, life, Love, memories, metachromatic leukodystrophy, MLD, purpose, sadness, sorrow, special needs, strength, warriors
Hurt people, hurt people
• September 21, 2021 • 4 CommentsPosted in Diagnosed, Life after diagnosis, living
Tags: dementia, eli and ella, Eliandellasprayerwarriors, God, hurt people hurt people, journey, life, metachromatic leukodystrophy, MLD, rare disease, sobriety, sorrow, strength
A change of perspective
• August 11, 2021 • 1 CommentPosted in Along the way, Day by day 2021, Diagnosed, Life after diagnosis, living
Tags: acceptance, eli and ella, Eliandellasprayerwarriors, Fear, God, gratitude, journey, joy, life, Love, metachromatic leukodystrophy, MLD, perspective, sorrow, special needs, strength
When love hurts
• August 2, 2021 • 1 CommentPosted in Along the way, Back to life and living, Day by day 2021, Diagnosed
Tags: choices, Eliandellasprayerwarriors, Fear, God, hurt, journey, life, Love, mental health, MLD, one day at a time, pain, sorrow, special needs parent, strength, trust
Fear Not 