Diagnosed | Fear Not

Archive for the 'Diagnosed' Category

Dream a little dream

• June 26, 2019 • 2 Comments

Posted in Along the way
Tags: Dream come true, Eli and Ellas Prayer Warriors, God, leukodystrophy, metachromatic leukodystrophy, MLD, questioning, sorrow

The desperate search for joy in pain

• January 16, 2019 • 7 Comments

Posted in Diagnosed
Tags: acceptance, eli vivian, Eliandellasprayerwarriors, Ella vivian, Fear, gene therapy, God, journey, metachromatic leukodystrophy, MLD, normalcy, sorrow

Hitting the reset button

• August 15, 2017 • 2 Comments

Posted in Diagnosed

Rare Disease Day

• February 28, 2017 • Leave a Comment

Posted in Diagnosed, Diagnosis, Life after diagnosis, Milan
Tags: clinical trial, life, metachromatic leukodystrophy, Milan, MLD, rare disease day

When you don’t (want to)see what’s right in front of your face

• October 7, 2016 • 2 Comments

Posted in Diagnosed, Life after diagnosis
Tags: Eli and Ellas Prayer Warriors, gene therapy, metachromatic leukodystrophy, MLD

Happiness may not always be a choice but laughter and love can be

• December 29, 2015 • Leave a Comment

Posted in Diagnosed
Tags: Eli and Ellas Prayer Warriors, happiness, laughter, Love, metachromatic leukodystrophy, MLD

Breaking the cycle… The relationship between my mom and I and the acceptance that has finally freed me and allowed me to change things for my own kids.

• July 21, 2015 • 6 Comments

Posted in Diagnosed, Life after diagnosis, My journey
Tags: Eli and Ellas Prayer Warriors, family, Fear, life, mental illness, MLD