Philly for the day and another lesson in never giving up – Jan 10
• January 11, 2021 • Leave a CommentPosted in Day by day 2021, Diagnosed
Tags: 2021, art museum, change, eli vivian, eliandella, gift, gratitude, growth, happiness, lessons, leukodystrophy, live, lucky, metachratoc leukodystrophy, Miracle, my4es, never give up, pats steaks, Philadelphia, Rocky Balboa, struggle, thankful, trials
Everyday life – post transplant.
• October 20, 2014 • 1 CommentPosted in Along the way, Back to life and living
Tags: appreciation, eliandella, metachromatic leukodystrophy, MLD, normalcy
Fear Not 