Philly for the day and another lesson in never giving up – Jan 10
• January 11, 2021 • Leave a CommentPosted in Day by day 2021, Diagnosed
Tags: 2021, art museum, change, eli vivian, eliandella, gift, gratitude, growth, happiness, lessons, leukodystrophy, live, lucky, metachratoc leukodystrophy, Miracle, my4es, never give up, pats steaks, Philadelphia, Rocky Balboa, struggle, thankful, trials
A note to me… For you
• November 29, 2014 • 5 CommentsPosted in Life after diagnosis, Pre MLD
Tags: acceptance, challenges, changes, letter to myself, metachratoc leukodystrophy, MLD
Fear Not 