Drowning in my sleep
• April 5, 2023 • 1 CommentPosted in Along the way, Diagnosed, Life after diagnosis, living, Milan, the ride of my life
Tags: acceptance, anxiety, believe, challenge, changes, day by day, drowning, eli and ella, Eli and Ellas Prayer Warriors, Eliandellasprayerwarriors, Enjoythemoment, family, Fear, gene therapy, God, God is my lifeguard, gratitude, Hero, hope, journey, joy, learning, life, lifeguard, Love, memories, metachromatic leukodystrophy, MLD, never give up, normalcy, sadness, scared Jesus, sobriety, sorrow, special needs, strength, trust, warriors, water
When love hurts
• August 2, 2021 • 1 CommentPosted in Along the way, Back to life and living, Day by day 2021, Diagnosed
Tags: choices, Eliandellasprayerwarriors, Fear, God, hurt, journey, life, Love, mental health, MLD, one day at a time, pain, sorrow, special needs parent, strength, trust
Fear Not 