Fear | Fear Not

Treasured moments

• July 5, 2020 • Leave a Comment

Posted in Diagnosed, Life after diagnosis
Tags: acceptance, Eli and Ellas Prayer Warriors, Eliandellasprayerwarriors, Enjoythemoment, Fear, friends, gene therapy, God, hope, journey, joy, life, Love, memories, metachromatic leukodystrophy, MLD, strength

And so I write

• January 25, 2020 • Comments Off

Posted in Diagnosed, Life after diagnosis, My journey, the ride of my life
Tags: acceptance, challenge, changes, demons, Eliandellasprayerwarriors, Fear, God, hope, journey, life, metachromatic leukodystrophy, MLD, sorrow, strength, warriors

The gift of conformity

• December 27, 2019 • 7 Comments

Posted in Back to life and living, Life after diagnosis, Milan
Tags: acceptance, conformity, Eliandellasprayerwarriors, Fear, journey, life, memories, metachromatic leukodystrophy, Milan, MLD, strength

The pain of letting go

• October 27, 2019 • Comments Off

Posted in Along the way, Diagnosed, Life after diagnosis, the ride of my life
Tags: acceptance, Eliandellasprayerwarriors, Fear, grief, journey, letting go, life, Love, metachromatic leukodystrophy, MLD, normalcy, sorrow

The desperate search for joy in pain

• January 16, 2019 • 7 Comments

Posted in Diagnosed
Tags: acceptance, eli vivian, Eliandellasprayerwarriors, Ella vivian, Fear, gene therapy, God, journey, metachromatic leukodystrophy, MLD, normalcy, sorrow

Breaking the cycle… The relationship between my mom and I and the acceptance that has finally freed me and allowed me to change things for my own kids.

• July 21, 2015 • 6 Comments

Posted in Diagnosed, Life after diagnosis, My journey
Tags: Eli and Ellas Prayer Warriors, family, Fear, life, mental illness, MLD

Questions without answers

• July 23, 2013 • 2 Comments

Posted in Milan
Tags: Enjoythemoment, Fear, God, life, Love, memories, Questions, Wondering