Learning to give yourself grace
• January 18, 2023 • 1 CommentPosted in Along the way, Life after diagnosis, living
Tags: acceptance, anxiety, day by day, DIY, do it yourself, eli and ella, Eliandellasprayerwarriors, Fear, gene therapy, Grace, gratitude, hope, journey, joy, learning, life, Love, memories, metachromatic leukodystrophy, MLD, normalcy, Pinterest, Pinterest fail, rare disease, sorrow, special needs, strength, warriors
Violated and vulnerable
• October 31, 2022 • 3 CommentsPosted in Along the way, Diagnosed, Life after diagnosis
Tags: acceptance, choices, eli and ella, Eli and Ellas Prayer Warriors, Eliandellasprayerwarriors, Facebook, Fear, God, hacked, hope, journey, lessons, life, Love, memories, metachromatic leukodystrophy, MLD, never give up, sorrow, special needs, strength, struggle, violated, warriors
I’m sorry Ella
• October 18, 2022 • 1 CommentPosted in Diagnosed, living
Tags: acceptance, caregiver, day by day, eli and ella, Eli and Ellas Prayer Warriors, Eliandellasprayerwarriors, Fear, God, I’m sorry, journey, life, Love, memories, metachromatic leukodystrophy, MLD, never give up, past life, sorrow, special needs
Four
• August 25, 2022 • 2 CommentsPosted in Diagnosed, living
Tags: acceptance, cherish, clinical trial, day by day, eli and ella, Eliandellasprayerwarriors, Enjoythemoment, Fear, four, gene therapy, God, Hero, journey, joy, life, Love, memories, metachromatic leukodystrophy, MLD, purpose, sadness, sorrow, special needs, strength, warriors
A change of perspective
• August 11, 2021 • 1 CommentPosted in Along the way, Day by day 2021, Diagnosed, Life after diagnosis, living
Tags: acceptance, eli and ella, Eliandellasprayerwarriors, Fear, God, gratitude, journey, joy, life, Love, metachromatic leukodystrophy, MLD, perspective, sorrow, special needs, strength
When love hurts
• August 2, 2021 • 1 CommentPosted in Along the way, Back to life and living, Day by day 2021, Diagnosed
Tags: choices, Eliandellasprayerwarriors, Fear, God, hurt, journey, life, Love, mental health, MLD, one day at a time, pain, sorrow, special needs parent, strength, trust
Is God good all of the time or only when we get what we pray for?
• May 5, 2021 • 1 CommentPosted in Diagnosed, Life after diagnosis, living
Tags: acceptance, anxiety, changes, depression, eli and ella, Eliandellasprayerwarriors, faith, Fear, God, is God good, journey, joy, life, Love, metachromatic leukodystrophy, MLD, prayer, sorrow, strength, surrender
Day by day in every way I’m getting better and better – Emile Coue – Jan 6-Jan 9th
• January 11, 2021 • Leave a CommentPosted in Day by day 2021, Diagnosed
Tags: anxiety, day by day, Eli and Ellas Prayer Warriors, Enjoythemoment, Fear, future, gene therapy, God, hope, journey, joy, keep going, learning, metachromatic leukodystrophy, MLD, never give up, normalcy, rare disease, sadness, sobriety, sorrow, special needs, strength, warriors
Jan 5th – Signs?
• January 6, 2021 • 2 CommentsPosted in Day by day 2021, Diagnosed
Tags: acceptance, anxiety, anxiousness, changes, death, depression, eli and ella, Eli and Ellas Prayer Warriors, Eliandellasprayerwarriors, family, Fear, God, journey, joy, life, Love, memories, mess, message, metachromatic leukodystrophy, MLD, signs, sobriety, sorrow, strength
Jan 4th 2021 – Finding gratitude
• January 6, 2021 • 1 CommentPosted in Day by day 2021, Diagnosed
Tags: acceptance, day by day, eli and ella, Eli and Ellas Prayer Warriors, Eliandellasprayerwarriors, Enjoythemoment, Fear, God, gratitude, journey, joy, life, Love, metachromatic leukodystrophy, MLD, never give up, sobriety, sorrow, strength, working on me
Fear Not 