Four
• August 25, 2022 • 2 CommentsPosted in Diagnosed, living
Tags: acceptance, cherish, clinical trial, day by day, eli and ella, Eliandellasprayerwarriors, Enjoythemoment, Fear, four, gene therapy, God, Hero, journey, joy, life, Love, memories, metachromatic leukodystrophy, MLD, purpose, sadness, sorrow, special needs, strength, warriors
Surrendering – the greatest gift I can give myself
• February 16, 2021 • 2 CommentsPosted in Life after diagnosis, living
Tags: acceptance, eli and ella, Eli and Ellas Prayer Warriors, Eliandellasprayerwarriors, future, gene therapy, God, journey, joy, learning, let go, life, Love, metachromatic leukodystrophy, MLD, music, sobriety, strength, surrender, warriors
Day by day in every way I’m getting better and better – Emile Coue – Jan 6-Jan 9th
• January 11, 2021 • Leave a CommentPosted in Day by day 2021, Diagnosed
Tags: anxiety, day by day, Eli and Ellas Prayer Warriors, Enjoythemoment, Fear, future, gene therapy, God, hope, journey, joy, keep going, learning, metachromatic leukodystrophy, MLD, never give up, normalcy, rare disease, sadness, sobriety, sorrow, special needs, strength, warriors
Life as I know it; day by day – Jan 1st
• January 6, 2021 • 1 CommentPosted in Day by day 2021
Tags: 2021, anxiety, caregiver, change, day by day, demons, Eli and Ellas Prayer Warriors, God, life, my4es, sobriety, special needs, warriors
For what it’s worth
• December 30, 2020 • 3 CommentsPosted in Diagnosed, Life after diagnosis, living
Tags: acceptance, challenge, changes, eli and ella, Eli and Ellas Prayer Warriors, Eliandellasprayerwarriors, family, Fear, gene therapy, God, Hero, journey, joy, life, Love, memories, metachromatic leukodystrophy, MLD, pictures, sorrow, strength, warriors
When you can’t look away
• December 1, 2020 • Leave a CommentPosted in Diagnosed, Diagnosis, Life after diagnosis, living
Tags: acceptance, challenge, changes, eli and ella, Eliandellasprayerwarriors, Enjoythemoment, family, Fear, gene therapy, gift, journey, joy, life, Love, lucky, memories, metachromatic leukodystrophy, MLD, sorrow, strength, warriors
PTSD
• August 6, 2020 • Leave a CommentPosted in Along the way, Diagnosed, Life after diagnosis, living, My journey, the ride of my life
Tags: eli and ella, Eli and Ellas Prayer Warriors, Eliandellasprayerwarriors, Fear, friends, gene therapy, God, growth, healing, journey, joy, life, memories, metachromatic leukodystrophy, Milan, missing, MLD, post traumatic stress disorder, PTSD, strength, warriors
And so I write
• January 25, 2020 • Comments Off on And so I writePosted in Diagnosed, Life after diagnosis, My journey, the ride of my life
Tags: acceptance, challenge, changes, demons, Eliandellasprayerwarriors, Fear, God, hope, journey, life, metachromatic leukodystrophy, MLD, sorrow, strength, warriors
Life as I know it three years later
• September 19, 2015 • 6 CommentsPosted in Life after diagnosis
Tags: diagnosis, eli and ella, lessons, life changes, metachromatic leukodystrophy, MLD, warriors
Learning along the way… One obstacle at a time
• September 24, 2014 • 6 CommentsPosted in Diagnosed
Tags: believe, learning, metachromatic leukodystrophy, obstacle, warriors
Fear Not 