4 a.m. thoughts
• November 29, 2023 • 2 CommentsPosted in Back to life and living, Diagnosed, Life after diagnosis, living, My journey, the ride of my life
Tags: acceptance, anxiety, caregiver, challenge, dark night of the soul, darkness, day by day, depression, eli and ella, family, Fear, feelings, future, God, grief, growth, healing, inner critic, journey, learning, lessons, life, never give up, one day at a time, poetry, purpose, sadness, smothering, sober, sober living, sobriety, sorrow, special needs, struggle, thoughts
We are not different, we are unique
• June 22, 2023 • 2 CommentsPosted in Diagnosed, Life after diagnosis, living
Tags: acceptance, angel, angels, changes, clinical trial, day by day, eli and ella, Enjoythemoment, family, friends, gene therapy, God, gratitude, happiness, healing, Hero, hope, journey, joy, learning, lessons, live, Love, memories, metachromatic leukodystrophy, Miracle, MLD, never give up, normalcy, purpose, rare disease, special needs, spiritual, strength, teaching, thankful, unique, warriors
Etched in my memory
• June 2, 2023 • Leave a CommentPosted in Diagnosed
Tags: acceptance, challenge, eli and ella, Eliandellasprayerwarriors, Fear, future, gene therapy, God, gratitude, Hero, hope, journey, joy, learning, lessons, life, Love, memories, metachromatic leukodystrophy, Milan, Miracle, MLD, never give up, purpose, rare disease, sadness, sorrow, special needs, strength, trials, warriors
The priceless gift of gene therapy – Day 4 in Milan
• April 20, 2023 • 3 CommentsPosted in Back to life and living, Diagnosed, Diagnosis, Life after diagnosis, living, Milan
Tags: AGC biologics, clinical trial, day by day, eli and ella, Eli and Ellas Prayer Warriors, Eliandellasprayerwarriors, Enjoythemoment, family, gene therapy, gift, God, gratitude, happiness, healing, Hero, hope, Italy, journey, joy, learning, lessons, life, live, memories, metachromatic leukodystrophy, Milan, MLD, never give up, normalcy, purpose, rare disease, rgrowth, special needs, strength, thankful, warriors
No matter how many times we do it, it never gets easier – Day 5 in Milan
• April 20, 2023 • 1 CommentPosted in Along the way, Back to life and living, Diagnosed, Diagnosis, Life after diagnosis, living, Milan
Tags: anxiety, challenge, changes, clinical trial, day by day, eli and ella, Eli and Ellas Prayer Warriors, Enjoythemoment, family, Fear, gene therapy, grateful, gratitude, happiness, Hero, hope, journey, joy, learning, lessons, life, Love, memories, metachromatic leukodystrophy, Milan, MLD, MRI, never give up, purpose, rare disease, sorrow, special needs, strength, warriors
A good day – Day 3 in Milan
• April 18, 2023 • 4 CommentsPosted in Back to life and living, Diagnosed, Life after diagnosis, living, Milan, the ride of my life
Tags: appreciation, changes, clinical trial, day by day, eli and ella, Eliandellasprayerwarriors, family, friends, gene therapy, gift, God, gratitude, growth, happiness, healing, Hero, hope, hospital life, journey, learning, lessons, life, live, memories, metachromatic leukodystrophy, Milan, miracles, MLD, Mother Nature, never give up, past, purpose, rare disease, special needs, spring-ford, strength, struggle, thankful, warriors
Four
• August 25, 2022 • 2 CommentsPosted in Diagnosed, living
Tags: acceptance, cherish, clinical trial, day by day, eli and ella, Eliandellasprayerwarriors, Enjoythemoment, Fear, four, gene therapy, God, Hero, journey, joy, life, Love, memories, metachromatic leukodystrophy, MLD, purpose, sadness, sorrow, special needs, strength, warriors
Let’s be honest
• August 3, 2020 • Leave a CommentPosted in Diagnosed, Life after diagnosis, living, My journey
Tags: anxiety, eli and ella, Eli and Ellas Prayer Warriors, family, future, God, joy, learn, learning, life, Love, memories, pain, past, purpose, sadness, special needs
Finding purpose in pain
• April 7, 2015 • 4 CommentsPosted in Back to life and living, Diagnosis, Life after diagnosis
Tags: eli and ella, journey, joy, metachromatic leukodystrophy, MLD, purpose, sorrow
Fear Not 