The woman in Wawa
• February 17, 2026 • 2 CommentsPosted in Back to life and living, Diagnosed, living, My journey
Tags: acceptance, anxiety, aregiver, Becky reflects, blog, caregiver, caregiver stories, day by day, depression, Eli and Ellas Prayer Warriors, growth, Love, metachromatic leukodystrophy, one day at a time, parenting special needs, Questions, rare disease, real life, self compassion, special needs, strength
Traded not healed
• February 11, 2026 • Leave a CommentPosted in the ride of my life
Tags: addiction recovery, caregiver burnout, Eli and Ellas Prayer Warriors, God, metachromatic leukodystrophy, special needs parent, trauma and healing
It’s not your fault… and it’s not mine either
• March 1, 2025 • Leave a CommentPosted in Back to life and living, Diagnosed, Life after diagnosis, living, the ride of my life
Tags: acceptance, anxiety, challenge, challenging, clinical trial, day by day, depression, eli and ella, Eli and Ellas Prayer Warriors, family, forgiveness, gene therapy, God, Hero, journey, joy, life, Love, memories, MLD, never give up, normalcy, parenting, rare disease, sorrow, special needs, strength, warriors
Out of the darkness
• December 3, 2024 • Leave a CommentPosted in Along the way, Back to life and living, Diagnosed, Joe Dispenza retreat, Life after diagnosis, living, My journey, sobriety, the ride of my life
Tags: acceptance, anxiety, change your life, day by day, depression, eli and ella, Eli and Ellas Prayer Warriors, family, Fear, gene therapy, give to give, God, gratitude, joe dispenza, journey, joy, learning, life, Love, meditation, memories, metachromatic leukodystrophy, MLD, never give up, out of the darkness, retreat, sorrow, special needs, strength, therapy, victim
Sunday Sept 22 – beginning to teach Eli meditation
• September 27, 2024 • Leave a CommentPosted in Back to life and living, Diagnosed, Joe Dispenza retreat, Life after diagnosis, living, My journey, the ride of my life
Tags: acceptance, anxiety, breathing, challenge, clinical trial, day by day, eli and ella, Eli and Ellas Prayer Warriors, family, Fear, gene therapy, God, gratitude, healing, Hero, hope, joe dispenza, journey, joy, learning, life, Love, meditation, memories, MLD, never give up, normalcy, Orlando, patience, rare disease, retreat, special needs, strength, warriors
When believing isn’t enough
• July 28, 2024 • Leave a CommentPosted in Back to life and living, Diagnosed, Life after diagnosis, living, My journey, the ride of my life
Tags: acceptance, believing in god, day by day, eli and ella, Eli and Ellas Prayer Warriors, family, Fear, gene therapy, God, hope, journey, joy, life, Love, memories, metachromatic leukodystrophy, MLD, never give up, sorrow, special needs, special needs parenting, strength, tough times never last, warriors, when believing isn’t enough
When a picture tells a thousand words
• June 12, 2024 • 2 CommentsPosted in Along the way, Diagnosed, Life after diagnosis, living, the ride of my life
Tags: acceptance, challenge, changes, class of 2024, clinical trial, day by day, eli and ella, Eli and Ellas Prayer Warriors, enjoy the moment, family, Fear, gene therapy, God, graduating, graduation, gratitude, Hero, hope, journey, joy, learning, life, Love, memories, metachromatic leukodystrophy, MLD, never give up, normalcy, parenting, persevering, rare disease, sorrow, special needs, strength, warriors
How quitting alcohol has increased my patience
• January 25, 2024 • Leave a CommentPosted in Back to life and living, Diagnosed, Life after diagnosis, living, My journey, sobriety, the ride of my life
Tags: acceptance, alcohol, challenge, changes, choices, day by day, eli and ella, Eli and Ellas Prayer Warriors, family, Fear, God, gratitude, hope, journey, learning, lessons, life, Love, memories, MLD, never give up, one day at a time, patience, rare disease, sadness, sober, sober living, sobriety, sorrow, special needs, special needs parenting, strength, warriors
Building more than good basketball players
• January 18, 2024 • Leave a CommentPosted in Along the way, Back to life and living, Day by day 2021, Diagnosed, Life after diagnosis, living
Tags: acceptance, basketball, challenge, clinical trial, day by day, eli and ella, Eli and Ellas Prayer Warriors, family, gene therapy, God, gratitude, hope, inclusion, journey, joy, life, Love, metachromatic leukodystrophy, MLD, never give up, normalcy, rare disease, special needs, spring-ford, strength, team building, warriors
Life changing decisions
• January 12, 2024 • 2 CommentsPosted in Along the way, Back to life and living, Diagnosed, Life after diagnosis, living, My journey, the ride of my life
Tags: acceptance, changes, day by day, eli and ella, Eli and Ellas Prayer Warriors, Enjoythemoment, family, Fear, gene therapy, God, gratitude, hard things, Hero, hope, Indecision, journey, joy, learning, life, Love, memories, metachromatic leukodystrophy, MLD, my four warriors, never give up, rare disease, sorrow, special needs, special needs parenting, strength, tough decisions, warriors, writing
Fear Not 