Blog Archives
Finding purpose in pain
• April 7, 2015 • 4 CommentsPosted in Back to life and living, Diagnosis, Life after diagnosis
Tags: eli and ella, journey, joy, metachromatic leukodystrophy, MLD, purpose, sorrow
Living, learning and loving
• February 22, 2015 • Leave a CommentPosted in Back to life and living
Tags: gene therapy, journey, learn, live, Love, metachromatic leukodystrophy, MLD, people, trials
Please
• February 9, 2015 • 3 CommentsPosted in Back to life and living, Life after diagnosis
Tags: Eliandellasprayerwarriors, journey, joy, life, metachromatic leukodystrophy, MLD, sorrow
A note to me… For you
• November 29, 2014 • 5 CommentsPosted in Life after diagnosis, Pre MLD
Tags: acceptance, challenges, changes, letter to myself, metachratoc leukodystrophy, MLD
Everyday life – post transplant.
• October 20, 2014 • 1 CommentPosted in Along the way, Back to life and living
Tags: appreciation, eliandella, metachromatic leukodystrophy, MLD, normalcy
When looking backward gets you nowhere fast
• October 12, 2014 • 2 CommentsPosted in Back to life and living
Tags: acceptance, eli, ella, future, helpless, life, metachromatic leukodystrophy, MLD, past, presrnt
Happy 9th Birthday Eli…my fighter…my hero!
• September 2, 2014 • 5 CommentsPosted in Life after diagnosis
Tags: Birthday, Eli and Ellas Prayer Warriors, Fighter, Hero, metachromatic leukodystrophy, MLD, strength
