Fear Not

Life isn't about waiting for the storm to pass… it's about learning to dance in the rain!!
 
 

Blog Archives

Finding purpose in pain 

• April 7, 2015 • 4 Comments

Posted in Back to life and living, Diagnosis, Life after diagnosis
Tags: eli and ella, journey, joy, metachromatic leukodystrophy, MLD, purpose, sorrow


Living, learning and loving

• February 22, 2015 • Leave a Comment

Posted in Back to life and living
Tags: gene therapy, journey, learn, live, Love, metachromatic leukodystrophy, MLD, people, trials


Please

• February 9, 2015 • 3 Comments

Posted in Back to life and living, Life after diagnosis
Tags: Eliandellasprayerwarriors, journey, joy, life, metachromatic leukodystrophy, MLD, sorrow


A note to me… For you

• November 29, 2014 • 5 Comments

Posted in Life after diagnosis, Pre MLD
Tags: acceptance, challenges, changes, letter to myself, metachratoc leukodystrophy, MLD


Everyday life – post transplant.

• October 20, 2014 • 1 Comment

Posted in Along the way, Back to life and living
Tags: appreciation, eliandella, metachromatic leukodystrophy, MLD, normalcy


When looking backward gets you nowhere fast

• October 12, 2014 • 2 Comments

Posted in Back to life and living
Tags: acceptance, eli, ella, future, helpless, life, metachromatic leukodystrophy, MLD, past, presrnt


Happy 9th Birthday Eli…my fighter…my hero!

• September 2, 2014 • 5 Comments

Posted in Life after diagnosis
Tags: Birthday, Eli and Ellas Prayer Warriors, Fighter, Hero, metachromatic leukodystrophy, MLD, strength


« Previous Entries
Next Entries »

Recent Posts

  • The desperate search for joy in pain
  • Hitting the reset button
  • Rare Disease Day
  • When you don’t (want to)see what’s right in front of your face 
  • The sacrifice of Thanks 

Archives

  • January 2019
  • August 2017
  • February 2017
  • October 2016
  • March 2016
  • December 2015
  • September 2015
  • July 2015
  • April 2015
  • February 2015
  • November 2014
  • October 2014
  • September 2014
  • May 2014
  • January 2014
  • November 2013
  • October 2013
  • September 2013
  • July 2013
  • June 2013
  • May 2013
  • April 2013
  • March 2013
  • February 2013
  • January 2013
  • December 2012
  • November 2012
  • October 2012

Categories

  • Along the way
  • Back to life and living
  • Diagnosed
  • Diagnosis
  • Life after diagnosis
  • Milan
  • My journey
  • Pre MLD

Meta

  • Register
  • Log in
  • Entries RSS
  • Comments RSS
  • WordPress.com
 

Blog at WordPress.com.

Fear Not
Blog at WordPress.com.
Cancel