Out of the darkness
• December 3, 2024 • Leave a CommentPosted in Along the way, Back to life and living, Diagnosed, Joe Dispenza retreat, Life after diagnosis, living, My journey, sobriety, the ride of my life
Tags: acceptance, anxiety, change your life, day by day, depression, eli and ella, Eli and Ellas Prayer Warriors, family, Fear, gene therapy, give to give, God, gratitude, joe dispenza, journey, joy, learning, life, Love, meditation, memories, metachromatic leukodystrophy, MLD, never give up, out of the darkness, retreat, sorrow, special needs, strength, therapy, victim
Sunday Sept 22 – beginning to teach Eli meditation
• September 27, 2024 • Leave a CommentPosted in Back to life and living, Diagnosed, Joe Dispenza retreat, Life after diagnosis, living, My journey, the ride of my life
Tags: acceptance, anxiety, breathing, challenge, clinical trial, day by day, eli and ella, Eli and Ellas Prayer Warriors, family, Fear, gene therapy, God, gratitude, healing, Hero, hope, joe dispenza, journey, joy, learning, life, Love, meditation, memories, MLD, never give up, normalcy, Orlando, patience, rare disease, retreat, special needs, strength, warriors
Sept 20 2024
• September 27, 2024 • Leave a CommentPosted in Along the way, Joe Dispenza retreat, Life after diagnosis, living, My journey, the ride of my life
Tags: acceptance, anxiety, challenge, clinical trial, day by day, eli and ella, family, gene therapy, God, grateful, gratitude, healing, hope, joe dispenza, journey, joy, learning, life, Love, meditation, MLD, never give up, normalcy, Orlando, rare disease, retreat, sorrow, special needs, strength, warriors
When a picture tells a thousand words
• June 12, 2024 • 2 CommentsPosted in Along the way, Diagnosed, Life after diagnosis, living, the ride of my life
Tags: acceptance, challenge, changes, class of 2024, clinical trial, day by day, eli and ella, Eli and Ellas Prayer Warriors, enjoy the moment, family, Fear, gene therapy, God, graduating, graduation, gratitude, Hero, hope, journey, joy, learning, life, Love, memories, metachromatic leukodystrophy, MLD, never give up, normalcy, parenting, persevering, rare disease, sorrow, special needs, strength, warriors
Live Like Eli
• March 24, 2024 • 2 CommentsPosted in Along the way, Back to life and living, Diagnosed, Life after diagnosis, living
Tags: acceptance, changes, day by day, disability, eli and ella, faith, family, Fear, gene therapy, God, gratitude, hope, journey, joy, learning, life, live, live like Eli, Love, memories, metachromatic leukodystrophy, MLD, never give up, present moment, rare disease, sorrow, special needs, strength, surgery, warriors
How quitting alcohol has increased my patience
• January 25, 2024 • Leave a CommentPosted in Back to life and living, Diagnosed, Life after diagnosis, living, My journey, sobriety, the ride of my life
Tags: acceptance, alcohol, challenge, changes, choices, day by day, eli and ella, Eli and Ellas Prayer Warriors, family, Fear, God, gratitude, hope, journey, learning, lessons, life, Love, memories, MLD, never give up, one day at a time, patience, rare disease, sadness, sober, sober living, sobriety, sorrow, special needs, special needs parenting, strength, warriors
Life changing decisions
• January 12, 2024 • 2 CommentsPosted in Along the way, Back to life and living, Diagnosed, Life after diagnosis, living, My journey, the ride of my life
Tags: acceptance, changes, day by day, eli and ella, Eli and Ellas Prayer Warriors, Enjoythemoment, family, Fear, gene therapy, God, gratitude, hard things, Hero, hope, Indecision, journey, joy, learning, life, Love, memories, metachromatic leukodystrophy, MLD, my four warriors, never give up, rare disease, sorrow, special needs, special needs parenting, strength, tough decisions, warriors, writing
The many joys of the game
• December 17, 2023 • 2 CommentsPosted in Along the way, Back to life and living, Diagnosed, Life after diagnosis, living, My journey, the ride of my life
Tags: acceptance, basketball, challenge, changes, day by day, eli and ella, fitting in, game, God, gratitude, Hero, hope, inclusion, inclusivity, journey, joy, learning, lessons, life, Love, memories, metachromatic leukodystrophy, MLD, never give up, normalcy, parenting, Questions, rare disease, special needs, strength, team, warriors
When even little things seem to be too much to bare
• December 13, 2023 • Leave a CommentPosted in Along the way, Back to life and living, Diagnosed, Life after diagnosis, living, My journey, the ride of my life
Tags: acceptance, changes, comfort, day by day, eli and ella, Eli and Ellas Prayer Warriors, emotions, Enjoythemoment, family, God, gratitude, hope, in her shoes, journey, joy, learning, letting go, life, Love, metachromatic leukodystrophy, MLD, never give up, one day at a time, parenting, proud mom, rare disease, special needs, strength, surrender, tears, warriors
4 a.m. thoughts
• November 29, 2023 • 2 CommentsPosted in Back to life and living, Diagnosed, Life after diagnosis, living, My journey, the ride of my life
Tags: acceptance, anxiety, caregiver, challenge, dark night of the soul, darkness, day by day, depression, eli and ella, family, Fear, feelings, future, God, grief, growth, healing, inner critic, journey, learning, lessons, life, never give up, one day at a time, poetry, purpose, sadness, smothering, sober, sober living, sobriety, sorrow, special needs, struggle, thoughts
Fear Not 