Sept 20 2024
• September 27, 2024 • Leave a CommentPosted in Along the way, Joe Dispenza retreat, Life after diagnosis, living, My journey, the ride of my life
Tags: acceptance, anxiety, challenge, clinical trial, day by day, eli and ella, family, gene therapy, God, grateful, gratitude, healing, hope, joe dispenza, journey, joy, learning, life, Love, meditation, MLD, never give up, normalcy, Orlando, rare disease, retreat, sorrow, special needs, strength, warriors
Escaping with alcohol
• November 6, 2023 • Leave a CommentPosted in Along the way, Back to life and living, sobriety, the ride of my life
Tags: alcohol, change, depression, drew Barrymore, grateful, growth, journey, keep going, one day at a time, pain, sadness, sober, sobriety
The journey of many miles, tears and smiles – Thank you Milan
• April 28, 2023 • 1 CommentPosted in Along the way, Back to life and living, Diagnosed, Life after diagnosis, living, Milan, the ride of my life
Tags: acceptance, challenge, clinical trial, day by day, eli and ella, Enjoythemoment, family, Fear, gene therapy, God, goodbye Italy, grateful, gratitude, Hero, hope, hospital, Italy, journey, joy, life, Love, memories, metachromatic leukodystrophy, Milan, Milano due, miracles, MLD, never give up, normalcy, rare disease, sadness, sorrow, special needs, strength, thankful, warriors
No matter how many times we do it, it never gets easier – Day 5 in Milan
• April 20, 2023 • 1 CommentPosted in Along the way, Back to life and living, Diagnosed, Diagnosis, Life after diagnosis, living, Milan
Tags: anxiety, challenge, changes, clinical trial, day by day, eli and ella, Eli and Ellas Prayer Warriors, Enjoythemoment, family, Fear, gene therapy, grateful, gratitude, happiness, Hero, hope, journey, joy, learning, lessons, life, Love, memories, metachromatic leukodystrophy, Milan, MLD, MRI, never give up, purpose, rare disease, sorrow, special needs, strength, warriors
Fear Not 