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The gift of struggle

• June 22, 2020 • 2 Comments

Posted in Diagnosed, Life after diagnosis, My journey
Tags: challenge, changes, eli and ella, Eliandellasprayerwarriors, gene therapy, God, Hero, journey, joy, life, memories, metachromatic leukodystrophy, MLD, rare disease, strength, struggle

And so I write

• January 25, 2020 • Comments Off

Posted in Diagnosed, Life after diagnosis, My journey, the ride of my life
Tags: acceptance, challenge, changes, demons, Eliandellasprayerwarriors, Fear, God, hope, journey, life, metachromatic leukodystrophy, MLD, sorrow, strength, warriors

Dream a little dream

• June 26, 2019 • 2 Comments

Posted in Along the way
Tags: Dream come true, Eli and Ellas Prayer Warriors, God, leukodystrophy, metachromatic leukodystrophy, MLD, questioning, sorrow

The desperate search for joy in pain

• January 16, 2019 • 7 Comments

Posted in Diagnosed
Tags: acceptance, eli vivian, Eliandellasprayerwarriors, Ella vivian, Fear, gene therapy, God, journey, metachromatic leukodystrophy, MLD, normalcy, sorrow

The sacrifice of Thanks

• March 8, 2016 • Leave a Comment

Posted in Back to life and living
Tags: God, gratitude, metachromatic leukodystrophy, MLD, thankful

Questions without answers

• July 23, 2013 • 2 Comments

Posted in Milan
Tags: Enjoythemoment, Fear, God, life, Love, memories, Questions, Wondering

Digging Deeper

• July 8, 2013 • 5 Comments

Posted in Milan
Tags: challenge, Eliandellasprayerwarriors, God, hospital, Milan, MLD, sorrow, strength