Archive for the 'the ride of my life' Category
The many joys of the game
• December 17, 2023 • 2 CommentsPosted in Along the way, Back to life and living, Diagnosed, Life after diagnosis, living, My journey, the ride of my life
Tags: acceptance, basketball, challenge, changes, day by day, eli and ella, fitting in, game, God, gratitude, Hero, hope, inclusion, inclusivity, journey, joy, learning, lessons, life, Love, memories, metachromatic leukodystrophy, MLD, never give up, normalcy, parenting, Questions, rare disease, special needs, strength, team, warriors
When even little things seem to be too much to bare
• December 13, 2023 • Leave a CommentPosted in Along the way, Back to life and living, Diagnosed, Life after diagnosis, living, My journey, the ride of my life
Tags: acceptance, changes, comfort, day by day, eli and ella, Eli and Ellas Prayer Warriors, emotions, Enjoythemoment, family, God, gratitude, hope, in her shoes, journey, joy, learning, letting go, life, Love, metachromatic leukodystrophy, MLD, never give up, one day at a time, parenting, proud mom, rare disease, special needs, strength, surrender, tears, warriors
4 a.m. thoughts
• November 29, 2023 • 2 CommentsPosted in Back to life and living, Diagnosed, Life after diagnosis, living, My journey, the ride of my life
Tags: acceptance, anxiety, caregiver, challenge, dark night of the soul, darkness, day by day, depression, eli and ella, family, Fear, feelings, future, God, grief, growth, healing, inner critic, journey, learning, lessons, life, never give up, one day at a time, poetry, purpose, sadness, smothering, sober, sober living, sobriety, sorrow, special needs, struggle, thoughts
“Let there be no darkness in your heart“
• November 21, 2023 • 2 CommentsPosted in Along the way, Back to life and living, Diagnosed, Life after diagnosis, living, My journey, sobriety, the ride of my life
Tags: acceptance, challenge, changes, death, depression, divorce, dying, family, fathers, Fear, God, gratitude, growth, happiness, healing, hope, journey, joy, learning, lessons, life, live, Love, memories, monsters, never give up, normalcy, parental loss, sadness, sobriety, sorrow, strength, struggle, thankful
When anxiety turns to panic
• November 9, 2023 • 2 CommentsPosted in living, My journey, the ride of my life
Tags: allergic reaction, anxiety, anxious, bee sting, control your thoughts, depression, eli and ella, intrusive thoughts, lessons, life and death, mind power, panic, racing heart, thoughts
Using anxiety as a catalyst for growth
• November 8, 2023 • Leave a CommentPosted in living, My journey, sobriety, the ride of my life
Tags: anxiety, anxious, challenge, change, day by day, drew Barrymore, eli and ella, gratitude, growth, learning, letting go, live, never give up, one day at a time, sorrow, strength, struggle
Escaping with alcohol
• November 6, 2023 • Leave a CommentPosted in Along the way, Back to life and living, sobriety, the ride of my life
Tags: alcohol, change, depression, drew Barrymore, grateful, growth, journey, keep going, one day at a time, pain, sadness, sober, sobriety
How to “find” gratitude even when you don’t feel it
• September 24, 2023 • Leave a CommentPosted in Diagnosed, Diagnosis, Life after diagnosis, living, My journey, the ride of my life
Tags: acceptance, blog, day by day, drew Barrymore, eli and ella, Eli and Ellas Prayer Warriors, finding gratitude, finding joy, GMA, God, good morning America, gratitude, Hero, hope, journey, joy, learning, life, Love, memories, metachromatic leukodystrophy, MLD, never give up, positive, positivity, rare disease, special needs, strength, today show, warriors, writing
When trusting your gut leads you to the unthinkable
• September 19, 2023 • Leave a CommentPosted in Back to life and living, Diagnosed, Diagnosis, Life after diagnosis, living, the ride of my life
Tags: CHOP, clinical trial, day by day, drew Barrymore, DuPont, eli and ella, Eli and Ellas Prayer Warriors, every day heroes, Fear, finding answers, gene therapy, God, hope, journey, life, Love, metachromatic leukodystrophy, MLD, neurologist, never give up, rare disease, special needs, strength, terminal illness, the today show, trusting your intuition, warriors
A moment we had only HOPED we would see
• August 31, 2023 • 1 CommentPosted in Along the way, Back to life and living, Diagnosed, Life after diagnosis, living, the ride of my life
Tags: acceptance, anxiety, challenge, changes, clinical trial, day by day, eli and ella, family, gene therapy, God, gratitude, hope, journey, joy, learning, lessons, life, Love, metachromatic leukodystrophy, Milan, MLD, never give up, normalcy, parenting special needs, parents magazine, rare disease, sadness, senior year, special needs, strength, thankful, today show, warriors
Fear Not 