Archive for the 'My journey' Category
Out of the darkness
• December 3, 2024 • Leave a CommentPosted in Along the way, Back to life and living, Diagnosed, Joe Dispenza retreat, Life after diagnosis, living, My journey, sobriety, the ride of my life
Tags: acceptance, anxiety, change your life, day by day, depression, eli and ella, Eli and Ellas Prayer Warriors, family, Fear, gene therapy, give to give, God, gratitude, joe dispenza, journey, joy, learning, life, Love, meditation, memories, metachromatic leukodystrophy, MLD, never give up, out of the darkness, retreat, sorrow, special needs, strength, therapy, victim
Sunday Sept 22 – beginning to teach Eli meditation
• September 27, 2024 • Leave a CommentPosted in Back to life and living, Diagnosed, Joe Dispenza retreat, Life after diagnosis, living, My journey, the ride of my life
Tags: acceptance, anxiety, breathing, challenge, clinical trial, day by day, eli and ella, Eli and Ellas Prayer Warriors, family, Fear, gene therapy, God, gratitude, healing, Hero, hope, joe dispenza, journey, joy, learning, life, Love, meditation, memories, MLD, never give up, normalcy, Orlando, patience, rare disease, retreat, special needs, strength, warriors
Sept 20 2024
• September 27, 2024 • Leave a CommentPosted in Along the way, Joe Dispenza retreat, Life after diagnosis, living, My journey, the ride of my life
Tags: acceptance, anxiety, challenge, clinical trial, day by day, eli and ella, family, gene therapy, God, grateful, gratitude, healing, hope, joe dispenza, journey, joy, learning, life, Love, meditation, MLD, never give up, normalcy, Orlando, rare disease, retreat, sorrow, special needs, strength, warriors
“I don’t want to end up like Eli!“
• September 12, 2024 • Leave a CommentPosted in Along the way, Diagnosed, Life after diagnosis, living, My journey, the ride of my life
Tags: acceptance, day by day, eli, eli and ella, ella, Fear, gene therapy, God, gratitude, hope, journey, joy, life, Love, memories, metachromatic leukodystrophy, MLD, never give up, Questions, sorrow, special needs, special needs parenting, strength, warriors, wheelchair
Living “50 First Dates”
• July 31, 2024 • Leave a CommentPosted in Back to life and living, Diagnosed, Life after diagnosis, living, My journey, the ride of my life
Tags: 50 first dates, acceptance, challenge, changes, clinical trial, day by day, eli and ella, family, Fear, gene therapy, God, gratitude, Hero, hope, journey, joy, life, living a movie, Love, memories, metachromatic leukodystrophy, MLD, never give up, rare disease, sorrow, special needs, special needs parenting, strength, thankful, warriors
When believing isn’t enough
• July 28, 2024 • Leave a CommentPosted in Back to life and living, Diagnosed, Life after diagnosis, living, My journey, the ride of my life
Tags: acceptance, believing in god, day by day, eli and ella, Eli and Ellas Prayer Warriors, family, Fear, gene therapy, God, hope, journey, joy, life, Love, memories, metachromatic leukodystrophy, MLD, never give up, sorrow, special needs, special needs parenting, strength, tough times never last, warriors, when believing isn’t enough
How quitting alcohol has increased my patience
• January 25, 2024 • Leave a CommentPosted in Back to life and living, Diagnosed, Life after diagnosis, living, My journey, sobriety, the ride of my life
Tags: acceptance, alcohol, challenge, changes, choices, day by day, eli and ella, Eli and Ellas Prayer Warriors, family, Fear, God, gratitude, hope, journey, learning, lessons, life, Love, memories, MLD, never give up, one day at a time, patience, rare disease, sadness, sober, sober living, sobriety, sorrow, special needs, special needs parenting, strength, warriors
Life changing decisions
• January 12, 2024 • 2 CommentsPosted in Along the way, Back to life and living, Diagnosed, Life after diagnosis, living, My journey, the ride of my life
Tags: acceptance, changes, day by day, eli and ella, Eli and Ellas Prayer Warriors, Enjoythemoment, family, Fear, gene therapy, God, gratitude, hard things, Hero, hope, Indecision, journey, joy, learning, life, Love, memories, metachromatic leukodystrophy, MLD, my four warriors, never give up, rare disease, sorrow, special needs, special needs parenting, strength, tough decisions, warriors, writing
The many joys of the game
• December 17, 2023 • 2 CommentsPosted in Along the way, Back to life and living, Diagnosed, Life after diagnosis, living, My journey, the ride of my life
Tags: acceptance, basketball, challenge, changes, day by day, eli and ella, fitting in, game, God, gratitude, Hero, hope, inclusion, inclusivity, journey, joy, learning, lessons, life, Love, memories, metachromatic leukodystrophy, MLD, never give up, normalcy, parenting, Questions, rare disease, special needs, strength, team, warriors
When even little things seem to be too much to bare
• December 13, 2023 • Leave a CommentPosted in Along the way, Back to life and living, Diagnosed, Life after diagnosis, living, My journey, the ride of my life
Tags: acceptance, changes, comfort, day by day, eli and ella, Eli and Ellas Prayer Warriors, emotions, Enjoythemoment, family, God, gratitude, hope, in her shoes, journey, joy, learning, letting go, life, Love, metachromatic leukodystrophy, MLD, never give up, one day at a time, parenting, proud mom, rare disease, special needs, strength, surrender, tears, warriors
Fear Not 