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Archive for the 'Milan' Category

Drowning in my sleep

• April 5, 2023 • 1 Comment

Posted in Along the way, Diagnosed, Life after diagnosis, living, Milan, the ride of my life
Tags: acceptance, anxiety, believe, challenge, changes, day by day, drowning, eli and ella, Eli and Ellas Prayer Warriors, Eliandellasprayerwarriors, Enjoythemoment, family, Fear, gene therapy, God, God is my lifeguard, gratitude, Hero, hope, journey, joy, learning, life, lifeguard, Love, memories, metachromatic leukodystrophy, MLD, never give up, normalcy, sadness, scared Jesus, sobriety, sorrow, special needs, strength, trust, warriors, water

The gift of conformity

• December 27, 2019 • 7 Comments

Posted in Back to life and living, Life after diagnosis, Milan
Tags: acceptance, conformity, Eliandellasprayerwarriors, Fear, journey, life, memories, metachromatic leukodystrophy, Milan, MLD, strength

Rare Disease Day

• February 28, 2017 • 2 Comments

Posted in Diagnosed, Diagnosis, Life after diagnosis, Milan
Tags: clinical trial, life, metachromatic leukodystrophy, Milan, MLD, rare disease day

Questions without answers

• July 23, 2013 • 2 Comments

Posted in Milan
Tags: Enjoythemoment, Fear, God, life, Love, memories, Questions, Wondering

Happy Birthday Ella!!!!

• July 11, 2013 • 8 Comments

Posted in Diagnosed, Milan
Tags: Birthday, Eliandellasprayerwarriors, Hero, Love, Milan, Miracle

Digging Deeper

• July 8, 2013 • 5 Comments

Posted in Milan
Tags: challenge, Eliandellasprayerwarriors, God, hospital, Milan, MLD, sorrow, strength

tick tock

• June 13, 2013 • 23 Comments

Posted in Milan