Archive for the 'Diagnosed' Category
The voice of alcohol
• November 13, 2023 • 1 CommentPosted in Along the way, Back to life and living, Life after diagnosis, living, My journey, sobriety
Tags: alcohol, anxious, blog, eli and ella, one day at a time, recovery, save me, save me from myself, sober, sobertiktok, sobriety, surrender
The elephant in the room for special needs parents
• November 12, 2023 • Leave a CommentPosted in Along the way, Back to life and living, Life after diagnosis, living
Tags: assisted living, autism, burnout, caregiver, day by day, disability, eli and ella, group home, long term care, MLD, never give up, Questions, special needs, where will my special needs child live
Escaping with alcohol
• November 6, 2023 • Leave a CommentPosted in Along the way, Back to life and living, sobriety, the ride of my life
Tags: alcohol, change, depression, drew Barrymore, grateful, growth, journey, keep going, one day at a time, pain, sadness, sober, sobriety
When God is good but life’s still hard
• October 9, 2023 • Leave a CommentPosted in Diagnosed, Life after diagnosis, living, My journey
Tags: acceptance, day by day, don’t quit, eli and ella, Eli and Ellas Prayer Warriors, Fear, gene therapy, God, god is good, gratitude, have faith, hope, Jesus, keep going, learning, life, life is hard, memories, metachromatic leukodystrophy, MLD, never give up, one day at a time, parents, sorrow, special needs, strength, suicide awareness, warriors, you are loved
How to “find” gratitude even when you don’t feel it
• September 24, 2023 • Leave a CommentPosted in Diagnosed, Diagnosis, Life after diagnosis, living, My journey, the ride of my life
Tags: acceptance, blog, day by day, drew Barrymore, eli and ella, Eli and Ellas Prayer Warriors, finding gratitude, finding joy, GMA, God, good morning America, gratitude, Hero, hope, journey, joy, learning, life, Love, memories, metachromatic leukodystrophy, MLD, never give up, positive, positivity, rare disease, special needs, strength, today show, warriors, writing
When trusting your gut leads you to the unthinkable
• September 19, 2023 • Leave a CommentPosted in Back to life and living, Diagnosed, Diagnosis, Life after diagnosis, living, the ride of my life
Tags: CHOP, clinical trial, day by day, drew Barrymore, DuPont, eli and ella, Eli and Ellas Prayer Warriors, every day heroes, Fear, finding answers, gene therapy, God, hope, journey, life, Love, metachromatic leukodystrophy, MLD, neurologist, never give up, rare disease, special needs, strength, terminal illness, the today show, trusting your intuition, warriors
A moment we had only HOPED we would see
• August 31, 2023 • 1 CommentPosted in Along the way, Back to life and living, Diagnosed, Life after diagnosis, living, the ride of my life
Tags: acceptance, anxiety, challenge, changes, clinical trial, day by day, eli and ella, family, gene therapy, God, gratitude, hope, journey, joy, learning, lessons, life, Love, metachromatic leukodystrophy, Milan, MLD, never give up, normalcy, parenting special needs, parents magazine, rare disease, sadness, senior year, special needs, strength, thankful, today show, warriors
My wish for this school year
• August 27, 2023 • Leave a CommentPosted in Back to life and living, Diagnosed, Life after diagnosis, living, My journey
Tags: acceptance, buddies, challenge, changes, day by day, differences, eating lunch alone, eli and ella, Eli and Ellas Prayer Warriors, family, friends, friendship, God, golden rule, gratitude, hope, inclusion, journey, joy, learning, life, Love, memories, metachromatic leukodystrophy, MLD, never give up, normalcy, rare disease, special needs, special needs parenting, strength, warriors
Jesus take the wheel
• August 24, 2023 • Leave a CommentPosted in Along the way, Back to life and living, Diagnosed, Life after diagnosis, living, the ride of my life
Tags: acceptance, changes, day by day, eli and ella, Eli and Ellas Prayer Warriors, Enjoythemoment, family, Fear, gene therapy, God, gratitude, Hero, hope, Jesus, Jesus take the wheel, journey, learning, letting go, life, Love, metachromatic leukodystrophy, MLD, never give up, rare disease, sorrow, special needs, strength, warriors
Fear Not 