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Blog Archives

The gift of struggle

• June 22, 2020 • 2 Comments

Posted in Diagnosed, Life after diagnosis, My journey
Tags: challenge, changes, eli and ella, Eliandellasprayerwarriors, gene therapy, God, Hero, journey, joy, life, memories, metachromatic leukodystrophy, MLD, rare disease, strength, struggle

And so I write

• January 25, 2020 • Comments Off

Posted in Diagnosed, Life after diagnosis, My journey, the ride of my life
Tags: acceptance, challenge, changes, demons, Eliandellasprayerwarriors, Fear, God, hope, journey, life, metachromatic leukodystrophy, MLD, sorrow, strength, warriors

The gift of conformity

• December 27, 2019 • 7 Comments

Posted in Back to life and living, Life after diagnosis, Milan
Tags: acceptance, conformity, Eliandellasprayerwarriors, Fear, journey, life, memories, metachromatic leukodystrophy, Milan, MLD, strength

Happy 9th Birthday Eli…my fighter…my hero!

• September 2, 2014 • 5 Comments

Posted in Life after diagnosis
Tags: Birthday, Eli and Ellas Prayer Warriors, Fighter, Hero, metachromatic leukodystrophy, MLD, strength

Digging Deeper

• July 8, 2013 • 5 Comments

Posted in Milan
Tags: challenge, Eliandellasprayerwarriors, God, hospital, Milan, MLD, sorrow, strength