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The gift of conformity

• December 27, 2019 • 7 Comments

Posted in Back to life and living, Life after diagnosis, Milan
Tags: acceptance, conformity, Eliandellasprayerwarriors, Fear, journey, life, memories, metachromatic leukodystrophy, Milan, MLD, strength

The pain of letting go

• October 27, 2019 • Comments Off

Posted in Along the way, Diagnosed, Life after diagnosis, the ride of my life
Tags: acceptance, Eliandellasprayerwarriors, Fear, grief, journey, letting go, life, Love, metachromatic leukodystrophy, MLD, normalcy, sorrow

Rare Disease Day

• February 28, 2017 • 2 Comments

Posted in Diagnosed, Diagnosis, Life after diagnosis, Milan
Tags: clinical trial, life, metachromatic leukodystrophy, Milan, MLD, rare disease day

Breaking the cycle… The relationship between my mom and I and the acceptance that has finally freed me and allowed me to change things for my own kids.

• July 21, 2015 • 6 Comments

Posted in Diagnosed, Life after diagnosis, My journey
Tags: Eli and Ellas Prayer Warriors, family, Fear, life, mental illness, MLD

Please

• February 9, 2015 • 3 Comments

Posted in Back to life and living, Life after diagnosis
Tags: Eliandellasprayerwarriors, journey, joy, life, metachromatic leukodystrophy, MLD, sorrow

When looking backward gets you nowhere fast

• October 12, 2014 • 2 Comments

Posted in Back to life and living
Tags: acceptance, eli, ella, future, helpless, life, metachromatic leukodystrophy, MLD, past, presrnt

His biggest fan…for life

• May 22, 2014 • 2 Comments

Posted in Diagnosed
Tags: Baseball, Eliandellasprayerwarriors, friends, life, MLD, sadness, sorrow

Questions without answers

• July 23, 2013 • 2 Comments

Posted in Milan
Tags: Enjoythemoment, Fear, God, life, Love, memories, Questions, Wondering