The woman in Wawa
• February 17, 2026 • 2 CommentsPosted in Back to life and living, Diagnosed, living, My journey
Tags: acceptance, anxiety, aregiver, Becky reflects, blog, caregiver, caregiver stories, day by day, depression, Eli and Ellas Prayer Warriors, growth, Love, metachromatic leukodystrophy, one day at a time, parenting special needs, Questions, rare disease, real life, self compassion, special needs, strength
The voice of alcohol
• November 13, 2023 • 1 CommentPosted in Along the way, Back to life and living, Life after diagnosis, living, My journey, sobriety
Tags: alcohol, anxious, blog, eli and ella, one day at a time, recovery, save me, save me from myself, sober, sobertiktok, sobriety, surrender
How to “find” gratitude even when you don’t feel it
• September 24, 2023 • Leave a CommentPosted in Diagnosed, Diagnosis, Life after diagnosis, living, My journey, the ride of my life
Tags: acceptance, blog, day by day, drew Barrymore, eli and ella, Eli and Ellas Prayer Warriors, finding gratitude, finding joy, GMA, God, good morning America, gratitude, Hero, hope, journey, joy, learning, life, Love, memories, metachromatic leukodystrophy, MLD, never give up, positive, positivity, rare disease, special needs, strength, today show, warriors, writing
Be happy…so I don’t have to be uncomfortable
• October 12, 2022 • Leave a CommentPosted in Diagnosed, Life after diagnosis, living, My journey
Tags: acceptance, blog, changes, eli and ella, Eliandellasprayerwarriors, Enjoythemoment, family, fitting in, gene therapy, God, journey, joy, life, Love, metachromatic leukodystrophy, MLD, sorrow, special needs, strength, trials, truth, uncomfortable, warriors
Fear Not 