Celebrating ten years post transplant thanks to gene therapy! Happy Re-Birthday Eli
• June 7, 2023 • Leave a CommentPosted in Along the way, Back to life and living, Diagnosed, Life after diagnosis, living, the ride of my life
Tags: acceptance, Birthday, challenge, changes, day by day, eli and ella, Eli and Ellas Prayer Warriors, Enjoythemoment, family, Fear, gene therapy, God, gratitude, Hero, hope, journey, joy, learning, life, Love, memories, metachromatic leukodystrophy, Milan, MLD, never give up, normalcy, one day at a time, rare disease, sibling love, sorrow, special needs, strength, warriors
A gift
• November 4, 2022 • 1 CommentPosted in Diagnosed
Tags: acceptance, Birthday, caregiver, changes, day by day, eli and ella, Eli and Ellas Prayer Warriors, gene therapy, gift, God, gratitude, hope, learning, life, Love, memories, metachromatic leukodystrophy, MLD, never give up, rare disease, sadness, special needs, strength, thankful, warriors
Happy 9th Birthday Eli…my fighter…my hero!
• September 2, 2014 • 5 CommentsPosted in Life after diagnosis
Tags: Birthday, Eli and Ellas Prayer Warriors, Fighter, Hero, metachromatic leukodystrophy, MLD, strength
Happy Birthday Ella!!!!
• July 11, 2013 • 8 CommentsPosted in Diagnosed, Milan
Tags: Birthday, Eliandellasprayerwarriors, Hero, Love, Milan, Miracle
Fear Not 