
Posted in Back to life and living, Diagnosed, Life after diagnosis, living, My journey, sobriety, the ride of my life
Tags: acceptance, alcohol, challenge, changes, choices, day by day, eli and ella, Eli and Ellas Prayer Warriors, family, Fear, God, gratitude, hope, journey, learning, lessons, life, Love, memories, MLD, never give up, one day at a time, patience, rare disease, sadness, sober, sober living, sobriety, sorrow, special needs, special needs parenting, strength, warriors
Posted in Along the way, Back to life and living, Day by day 2021, Diagnosed, Life after diagnosis, living
Tags: acceptance, basketball, challenge, clinical trial, day by day, eli and ella, Eli and Ellas Prayer Warriors, family, gene therapy, God, gratitude, hope, inclusion, journey, joy, life, Love, metachromatic leukodystrophy, MLD, never give up, normalcy, rare disease, special needs, spring-ford, strength, team building, warriors
Posted in Along the way, Back to life and living, Diagnosed, Life after diagnosis, living, My journey, the ride of my life
Tags: acceptance, changes, day by day, eli and ella, Eli and Ellas Prayer Warriors, Enjoythemoment, family, Fear, gene therapy, God, gratitude, hard things, Hero, hope, Indecision, journey, joy, learning, life, Love, memories, metachromatic leukodystrophy, MLD, my four warriors, never give up, rare disease, sorrow, special needs, special needs parenting, strength, tough decisions, warriors, writing
Posted in Diagnosed