Archive for May, 2023
When todays moments bring back memories of yesterday
• May 22, 2023 • Leave a CommentPosted in Back to life and living, Diagnosed, My journey, the ride of my life
Tags: acceptance, changes, consequences, day by day, death and dying, death of a parent, depression, disappointment, divorce, eli and ella, Enjoythemoment, family, Fear, forgiveness, gene therapy, God, goodbye, gratitude, healing, healing your hurts, hope, how to keep going, journey, learning, life, lonlieness, memories, metachromatic leukodystrophy, never give up, say I love you, sorrow, special needs, strength, warriors
I’m trying
• May 15, 2023 • 3 CommentsPosted in Diagnosed, Life after diagnosis, living, My journey, the ride of my life
Tags: acceptance, anxiety, challenge, changes, day by day, depression, eli and ella, Eli and Ellas Prayer Warriors, family, Fear, fitting in, gene therapy, God, gratitude, Hero, hope, journey, joy, learning, lessons, life, Love, memories, metachromatic leukodystrophy, MLD, never give up, normalcy, praying, rare disease, sadness, sorrow, special needs, strength, thankful, warriors
Changing the world one clinical trial at a time
• May 1, 2023 • 1 CommentPosted in Along the way, Back to life and living, Diagnosed, Life after diagnosis, living, Milan, My journey, the ride of my life
Tags: acceptance, anxiety, challenge, changes, clinical trial, day by day, eli and ella, family, gene therapy, God, gratitude, Hero, hope, hospital, Italy, journey, joy, learning, life, life changing, Love, memories, metachromatic leukodystrophy, Milan, Miracle, MLD, never give up, normalcy, rare disease, research, special needs, strength, treatment, warriors
Fear Not 