The woman in Wawa
• February 17, 2026 • 2 CommentsPosted in Back to life and living, Diagnosed, living, My journey
Tags: acceptance, anxiety, aregiver, Becky reflects, blog, caregiver, caregiver stories, day by day, depression, Eli and Ellas Prayer Warriors, growth, Love, metachromatic leukodystrophy, one day at a time, parenting special needs, Questions, rare disease, real life, self compassion, special needs, strength
A moment we had only HOPED we would see
• August 31, 2023 • 1 CommentPosted in Along the way, Back to life and living, Diagnosed, Life after diagnosis, living, the ride of my life
Tags: acceptance, anxiety, challenge, changes, clinical trial, day by day, eli and ella, family, gene therapy, God, gratitude, hope, journey, joy, learning, lessons, life, Love, metachromatic leukodystrophy, Milan, MLD, never give up, normalcy, parenting special needs, parents magazine, rare disease, sadness, senior year, special needs, strength, thankful, today show, warriors
Fear Not 