It’s not your fault… and it’s not mine either
• March 1, 2025 • Leave a CommentPosted in Back to life and living, Diagnosed, Life after diagnosis, living, the ride of my life
Tags: acceptance, anxiety, challenge, challenging, clinical trial, day by day, depression, eli and ella, Eli and Ellas Prayer Warriors, family, forgiveness, gene therapy, God, Hero, journey, joy, life, Love, memories, MLD, never give up, normalcy, parenting, rare disease, sorrow, special needs, strength, warriors
Out of the darkness
• December 3, 2024 • Leave a CommentPosted in Along the way, Back to life and living, Diagnosed, Joe Dispenza retreat, Life after diagnosis, living, My journey, sobriety, the ride of my life
Tags: acceptance, anxiety, change your life, day by day, depression, eli and ella, Eli and Ellas Prayer Warriors, family, Fear, gene therapy, give to give, God, gratitude, joe dispenza, journey, joy, learning, life, Love, meditation, memories, metachromatic leukodystrophy, MLD, never give up, out of the darkness, retreat, sorrow, special needs, strength, therapy, victim
Sunday Sept 22 – beginning to teach Eli meditation
• September 27, 2024 • Leave a CommentPosted in Back to life and living, Diagnosed, Joe Dispenza retreat, Life after diagnosis, living, My journey, the ride of my life
Tags: acceptance, anxiety, breathing, challenge, clinical trial, day by day, eli and ella, Eli and Ellas Prayer Warriors, family, Fear, gene therapy, God, gratitude, healing, Hero, hope, joe dispenza, journey, joy, learning, life, Love, meditation, memories, MLD, never give up, normalcy, Orlando, patience, rare disease, retreat, special needs, strength, warriors
Sept 20 2024
• September 27, 2024 • Leave a CommentPosted in Along the way, Joe Dispenza retreat, Life after diagnosis, living, My journey, the ride of my life
Tags: acceptance, anxiety, challenge, clinical trial, day by day, eli and ella, family, gene therapy, God, grateful, gratitude, healing, hope, joe dispenza, journey, joy, learning, life, Love, meditation, MLD, never give up, normalcy, Orlando, rare disease, retreat, sorrow, special needs, strength, warriors
“I don’t want to end up like Eli!“
• September 12, 2024 • Leave a CommentPosted in Along the way, Diagnosed, Life after diagnosis, living, My journey, the ride of my life
Tags: acceptance, day by day, eli, eli and ella, ella, Fear, gene therapy, God, gratitude, hope, journey, joy, life, Love, memories, metachromatic leukodystrophy, MLD, never give up, Questions, sorrow, special needs, special needs parenting, strength, warriors, wheelchair
Living “50 First Dates”
• July 31, 2024 • Leave a CommentPosted in Back to life and living, Diagnosed, Life after diagnosis, living, My journey, the ride of my life
Tags: 50 first dates, acceptance, challenge, changes, clinical trial, day by day, eli and ella, family, Fear, gene therapy, God, gratitude, Hero, hope, journey, joy, life, living a movie, Love, memories, metachromatic leukodystrophy, MLD, never give up, rare disease, sorrow, special needs, special needs parenting, strength, thankful, warriors
When believing isn’t enough
• July 28, 2024 • Leave a CommentPosted in Back to life and living, Diagnosed, Life after diagnosis, living, My journey, the ride of my life
Tags: acceptance, believing in god, day by day, eli and ella, Eli and Ellas Prayer Warriors, family, Fear, gene therapy, God, hope, journey, joy, life, Love, memories, metachromatic leukodystrophy, MLD, never give up, sorrow, special needs, special needs parenting, strength, tough times never last, warriors, when believing isn’t enough
When a picture tells a thousand words
• June 12, 2024 • 2 CommentsPosted in Along the way, Diagnosed, Life after diagnosis, living, the ride of my life
Tags: acceptance, challenge, changes, class of 2024, clinical trial, day by day, eli and ella, Eli and Ellas Prayer Warriors, enjoy the moment, family, Fear, gene therapy, God, graduating, graduation, gratitude, Hero, hope, journey, joy, learning, life, Love, memories, metachromatic leukodystrophy, MLD, never give up, normalcy, parenting, persevering, rare disease, sorrow, special needs, strength, warriors
Live Like Eli
• March 24, 2024 • 2 CommentsPosted in Along the way, Back to life and living, Diagnosed, Life after diagnosis, living
Tags: acceptance, changes, day by day, disability, eli and ella, faith, family, Fear, gene therapy, God, gratitude, hope, journey, joy, learning, life, live, live like Eli, Love, memories, metachromatic leukodystrophy, MLD, never give up, present moment, rare disease, sorrow, special needs, strength, surgery, warriors
Building more than good basketball players
• January 18, 2024 • Leave a CommentPosted in Along the way, Back to life and living, Day by day 2021, Diagnosed, Life after diagnosis, living
Tags: acceptance, basketball, challenge, clinical trial, day by day, eli and ella, Eli and Ellas Prayer Warriors, family, gene therapy, God, gratitude, hope, inclusion, journey, joy, life, Love, metachromatic leukodystrophy, MLD, never give up, normalcy, rare disease, special needs, spring-ford, strength, team building, warriors
Fear Not 