When God is good but life’s still hard
• October 9, 2023 • Leave a CommentPosted in Diagnosed, Life after diagnosis, living, My journey
Tags: acceptance, day by day, don’t quit, eli and ella, Eli and Ellas Prayer Warriors, Fear, gene therapy, God, god is good, gratitude, have faith, hope, Jesus, keep going, learning, life, life is hard, memories, metachromatic leukodystrophy, MLD, never give up, one day at a time, parents, sorrow, special needs, strength, suicide awareness, warriors, you are loved
Jesus take the wheel
• August 24, 2023 • Leave a CommentPosted in Along the way, Back to life and living, Diagnosed, Life after diagnosis, living, the ride of my life
Tags: acceptance, changes, day by day, eli and ella, Eli and Ellas Prayer Warriors, Enjoythemoment, family, Fear, gene therapy, God, gratitude, Hero, hope, Jesus, Jesus take the wheel, journey, learning, letting go, life, Love, metachromatic leukodystrophy, MLD, never give up, rare disease, sorrow, special needs, strength, warriors
Fear Not 