“I don’t want to end up like Eli!“
• September 12, 2024 • Leave a CommentPosted in Along the way, Diagnosed, Life after diagnosis, living, My journey, the ride of my life
Tags: acceptance, day by day, eli, eli and ella, ella, Fear, gene therapy, God, gratitude, hope, journey, joy, life, Love, memories, metachromatic leukodystrophy, MLD, never give up, Questions, sorrow, special needs, special needs parenting, strength, warriors, wheelchair
Eli’s sidekick, Ella Rose
• March 28, 2023 • Leave a CommentPosted in Diagnosed, Life after diagnosis, living
Tags: acceptance, basketball, clinical trial, day by day, eli and ella, Eli and Ellas Prayer Warriors, Eliandellasprayerwarriors, ella, Ella Rose, Enjoythemoment, fierce, friends, gene therapy, God, gratitude, hope, journey, joy, learning, life, Love, memories, metachromatic leukodystrophy, MLD, never give up, normalcy, rainbow loom, Rams, special, special needs, strength, warriors
When looking backward gets you nowhere fast
• October 12, 2014 • 2 CommentsPosted in Back to life and living
Tags: acceptance, eli, ella, future, helpless, life, metachromatic leukodystrophy, MLD, past, presrnt
Fear Not 