disability | Fear Not

Live Like Eli

• March 24, 2024 • 2 Comments

Posted in Along the way, Back to life and living, Diagnosed, Life after diagnosis, living
Tags: acceptance, changes, day by day, disability, eli and ella, faith, family, Fear, gene therapy, God, gratitude, hope, journey, joy, learning, life, live, live like Eli, Love, memories, metachromatic leukodystrophy, MLD, never give up, present moment, rare disease, sorrow, special needs, strength, surgery, warriors

The elephant in the room for special needs parents

• November 12, 2023 • Leave a Comment

Posted in Along the way, Back to life and living, Life after diagnosis, living
Tags: assisted living, autism, burnout, caregiver, day by day, disability, eli and ella, group home, long term care, MLD, never give up, Questions, special needs, where will my special needs child live